‘Well, if I don't show up and go through with the fertility treatment, I won't have a baby’; Patient involvement in clinical practice: Option or condition?

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‘Well, if I don't show up and go through with the fertility treatment, I won't have a baby’; Patient involvement in clinical practice : Option or condition? / Seibæk, Lene; Handberg, Charlotte; Beedholm, Kirsten.

In: Journal of Evaluation in Clinical Practice, 2020.

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@article{8636b102688a471d88c09fff7991a66d,
title = "{\textquoteleft}Well, if I don't show up and go through with the fertility treatment, I won't have a baby{\textquoteright}; Patient involvement in clinical practice: Option or condition?",
abstract = "Rationale, aims, and objectives: Worldwide, the concept of patient involvement has a growing impact on health care. Involvement in care represents a benefit to many patients, but while being involved is inevitable for the patient, we assume that getting involved is not in all cases obtainable. On this background, we aimed to investigate patients' perceptions and experiences concerning their treatment and care in a clinical fertility treatment setting, and discuss how these may influence their possibilities for involvement in care. Method: Based on findings from focus-group interviews with women undergoing fertility treatment, we have dealt with two aspects that impact the patients' possibilities for getting involved in their care: Imbalanced power relations in clinical settings, and patients' experiences of their physical vulnerability. Framed by phenomenological-hermeneutic text interpretation theory key condensations were analysed and critically discussed. Results: We found that (a) to the individual patient it did not represent a free choice to seek and undergo treatment; (b) patients experienced substantial dependency, vulnerability, and anxiety during their clinical pathway. Conclusion: We conclude that it is essential to integrate also the influence of the clinical setting and the bodily aspects of care in the understanding of patient involvement in clinical practice.",
keywords = "choice, clinical practice, fertility treatment, nursing, patient involvement, vulnerability",
author = "Lene Seib{\ae}k and Charlotte Handberg and Kirsten Beedholm",
year = "2020",
doi = "10.1111/jep.13435",
language = "English",
journal = "Journal of Evaluation in Clinical Practice Online",
issn = "1365-2753",
publisher = "Wiley-Blackwell Publishing Ltd.",

}

RIS

TY - JOUR

T1 - ‘Well, if I don't show up and go through with the fertility treatment, I won't have a baby’; Patient involvement in clinical practice

T2 - Option or condition?

AU - Seibæk, Lene

AU - Handberg, Charlotte

AU - Beedholm, Kirsten

PY - 2020

Y1 - 2020

N2 - Rationale, aims, and objectives: Worldwide, the concept of patient involvement has a growing impact on health care. Involvement in care represents a benefit to many patients, but while being involved is inevitable for the patient, we assume that getting involved is not in all cases obtainable. On this background, we aimed to investigate patients' perceptions and experiences concerning their treatment and care in a clinical fertility treatment setting, and discuss how these may influence their possibilities for involvement in care. Method: Based on findings from focus-group interviews with women undergoing fertility treatment, we have dealt with two aspects that impact the patients' possibilities for getting involved in their care: Imbalanced power relations in clinical settings, and patients' experiences of their physical vulnerability. Framed by phenomenological-hermeneutic text interpretation theory key condensations were analysed and critically discussed. Results: We found that (a) to the individual patient it did not represent a free choice to seek and undergo treatment; (b) patients experienced substantial dependency, vulnerability, and anxiety during their clinical pathway. Conclusion: We conclude that it is essential to integrate also the influence of the clinical setting and the bodily aspects of care in the understanding of patient involvement in clinical practice.

AB - Rationale, aims, and objectives: Worldwide, the concept of patient involvement has a growing impact on health care. Involvement in care represents a benefit to many patients, but while being involved is inevitable for the patient, we assume that getting involved is not in all cases obtainable. On this background, we aimed to investigate patients' perceptions and experiences concerning their treatment and care in a clinical fertility treatment setting, and discuss how these may influence their possibilities for involvement in care. Method: Based on findings from focus-group interviews with women undergoing fertility treatment, we have dealt with two aspects that impact the patients' possibilities for getting involved in their care: Imbalanced power relations in clinical settings, and patients' experiences of their physical vulnerability. Framed by phenomenological-hermeneutic text interpretation theory key condensations were analysed and critically discussed. Results: We found that (a) to the individual patient it did not represent a free choice to seek and undergo treatment; (b) patients experienced substantial dependency, vulnerability, and anxiety during their clinical pathway. Conclusion: We conclude that it is essential to integrate also the influence of the clinical setting and the bodily aspects of care in the understanding of patient involvement in clinical practice.

KW - choice

KW - clinical practice

KW - fertility treatment

KW - nursing

KW - patient involvement

KW - vulnerability

UR - http://www.scopus.com/inward/record.url?scp=85087731911&partnerID=8YFLogxK

U2 - 10.1111/jep.13435

DO - 10.1111/jep.13435

M3 - Journal article

C2 - 32652735

AN - SCOPUS:85087731911

JO - Journal of Evaluation in Clinical Practice Online

JF - Journal of Evaluation in Clinical Practice Online

SN - 1365-2753

ER -