Department of Economics and Business Economics

Validity of dementia diagnoses in the danish hospital registers

Research output: Contribution to journal/Conference contribution in journal/Contribution to newspaperJournal articleResearchpeer-review

  • T.K.T. Phung, Denmark
  • B.B. Andersen, Denmark
  • T.K.T. Phung, Denmark
  • P. Høgh, Denmark
  • Lars Vedel Kessing, Denmark
  • Preben Bo Mortensen
  • Gunhild Waldemar, Denmark
  • National Centre for Register-based Research
Background:The validity of dementia diagnoses in the Danish nationwide hospital registers was evaluated to determine the value of these registers in epidemiological research about dementia. Methods: Two hundred patients were randomly selected from 4,682 patients registered for the first time with a dementia diagnosis in the last 6 months of 2003. The patients' medical journals were reviewed to evaluate if they fulfilled ICD-10 and/or DSM-IV criteria for dementia and specific dementia subtypes. The patients who were still alive in 2006 were invited to an interview. Results: One hundred and ninety-seven journals were available for review and 51 patients were interviewed. A registered diagnosis of dementia was found to be correct in 169 (85.8%) cases. Regarding dementia subtypes, the degree of agreement between the registers and the results of the validating process was low with a kappa of 0.36 (95% CI 0.24-0.48). Conclusion: The validity of dementia syndrome in the Danish hospital registers was high and allows for epidemiological studies about dementia. Alzheimer's disease, although underregistered, also had a good validity once the diagnosis was registered. In general, other ICD-10 dementia subtypes in the registers had a low validity and are less suitable for epidemiological research
Original languageEnglish
JournalDementia and Geriatric Cognitive Disorders
Volume24
Pages (from-to)220-228
ISSN1420-8008
Publication statusPublished - 2007

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