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Unpacking the infrastructuring work of patients and caregivers around the world

Research output: Contribution to book/anthology/report/proceedingArticle in proceedingsResearchpeer-review


  • Yunan Chen, UC Irvine
  • ,
  • Xinning Gui, UC Irvine
  • ,
  • Claus Bossen
  • Valeria Herskovic, Pontificia Universidad Catolica de Chile
  • ,
  • Nervo Verdezoto, University of Leicester
  • ,
  • Xiaojuan Ma, Hong Kong University of Science and Technology
  • ,
  • Naveen Bagalkot, Srishti Institute of Art, Design and Technology
  • ,
  • Bernd Ploderer, Queensland University of Technology

Many healthcare systems around the world are noted as fragmented, complex and low-quality, leaving patients and caregivers with no choice but to engage in “infrastructuring work” to make it function for them. However, the work patients do to construct their functioning health service systems often remain invisible, with very little resources and technologies available to assist them. This workshop aims to bring together researchers, health practitioners, and patients to examine, discuss, and brainstorm ways to re-envision our healthcare service systems from the perspective of patients and caregivers. We aim to unpack the types of work that patients and caregivers do to reconfigure, reconstruct and adapt the healthcare infrastructure, and to brainstorm design solutions that can provide better infrastructuring assistance to them.

Original languageEnglish
Title of host publicationCHI EA 2019 - Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems
PublisherAssociation for Computing Machinery
Publication yearMay 2019
Article number3299021
ISBN (Electronic)9781450359719
Publication statusPublished - May 2019
Event2019 CHI Conference on Human Factors in Computing Systems, CHI EA 2019 - Glasgow, United Kingdom
Duration: 4 May 20199 May 2019


Conference2019 CHI Conference on Human Factors in Computing Systems, CHI EA 2019
LandUnited Kingdom
SeriesConference on Human Factors in Computing Systems - Proceedings

    Research areas

  • Caregivers Work, Engagement, Health Services, Healthcare Infrastructure, Invisible Work, Patients' Work

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