Aarhus University Seal

Understanding what matters most to patients in acute care in seven countries, using the flash mob study design

Research output: Contribution to journal/Conference contribution in journal/Contribution to newspaperJournal articleResearchpeer-review

  • Eva S van den Ende, Department of Neurology and Alzheimer Center, VU University Medical Center, Neuroscience Campus Amsterdam, Amsterdam, the Netherlands; Department of Epidemiology and Biostatistics, VU University Medical Center, Amsterdam, the Netherlands.
  • ,
  • Bo Schouten, Department of Neurology and Alzheimer Center, VU University Medical Center, Neuroscience Campus Amsterdam, Amsterdam, the Netherlands; Department of Epidemiology and Biostatistics, VU University Medical Center, Amsterdam, the Netherlands.
  • ,
  • Marjolein N T Kremers, Maastricht University
  • ,
  • Tim Cooksley, University Hospital of South Manchester
  • ,
  • Chris P Subbe, Ysbyty Gwynedd Hospital
  • ,
  • Immo Weichert, Princess Alexandra Hospital, Ipswich Rd, Woolloongabba, Qld, 4102, Australia. Tao.Mai@health.qld.gov.au.
  • ,
  • Louise S van Galen, Department of Neurology and Alzheimer Center, VU University Medical Center, Neuroscience Campus Amsterdam, Amsterdam, the Netherlands; Department of Epidemiology and Biostatistics, VU University Medical Center, Amsterdam, the Netherlands.
  • ,
  • Harm R Haak, Maastricht University
  • ,
  • John Kellett, South West Jutland Hospital
  • ,
  • Jelmer Alsma, Erasmus University Medical Center Cancer Institute, Department of Obstetrics and Gynaecology, Erasmus University Medical Center.
  • ,
  • Victoria Siegrist, Basel Institute for Clinical Epidemiology and Biostatistics, Department of Clinical Research, University Hospital Basel, University of Basel, Basel, Switzerland.
  • ,
  • Mark Holland, Section for Transfusion Medicine, Capital Region Blood Bank, Rigshospitalet, Copenhagen University Hospital, Denmark; Department of Surgery, Division of Acute Care Surgery, Centre for Translational Injury Research (CeTIR), University of Texas Medical School at Houston, TX, USA.
  • ,
  • Erika F Christensen
  • Colin A Graham, Chinese University of Hong Kong, Sha Tin, Hong Kong.
  • ,
  • Ling Yan Leung, Chinese University of Hong Kong, Sha Tin, Hong Kong.
  • ,
  • Line E Laugesen, South West Jutland Hospital
  • ,
  • Hanneke Merten, Department of Neurology and Alzheimer Center, VU University Medical Center, Neuroscience Campus Amsterdam, Amsterdam, the Netherlands; Department of Epidemiology and Biostatistics, VU University Medical Center, Amsterdam, the Netherlands.
  • ,
  • Fraz Mir, Addenbrooke's Hospital
  • ,
  • Rachel M Kidney, St James's University Hospital
  • ,
  • Mikkel Brabrand, South West Jutland Hospital
  • ,
  • Prabath W B Nanayakkara, Department of Neurology and Alzheimer Center, VU University Medical Center, Neuroscience Campus Amsterdam, Amsterdam, the Netherlands; Department of Epidemiology and Biostatistics, VU University Medical Center, Amsterdam, the Netherlands.
  • ,
  • Christian H Nickel, Division of Infectious Diseases and Hospital Epidemiology, University Hospital Basel, Petersgraben 4, 4031 Basel, Switzerland; Department of Biomedicine, University Hospital Basel, Petersgraben 4, 4031 Basel, Switzerland.
  • ,
  • Local collaborators

BACKGROUND: Truly patient-centred care needs to be aligned with what patients consider important, and is highly desirable in the first 24 h of an acute admission, as many decisions are made during this period. However, there is limited knowledge on what matters most to patients in this phase of their hospital stay. The objective of this study was to identify what mattered most to patients in acute care and to assess the patient perspective as to whether their treating doctors were aware of this.

METHODS: This was a large-scale, qualitative, flash mob study, conducted simultaneously in sixty-six hospitals in seven countries, starting November 14th 2018, ending 50 h later. One thousand eight hundred fifty adults in the first 24 h of an acute medical admission were interviewed on what mattered most to them, why this mattered and whether they felt the treating doctor was aware of this.

RESULTS: The most reported answers to "what matters most (and why)?" were 'getting better or being in good health' (why: to be with family/friends or pick-up life again), 'getting home' (why: more comfortable at home or to take care of someone) and 'having a diagnosis' (why: to feel less anxious or insecure). Of all patients, 51.9% felt the treating doctor did not know what mattered most to them.

CONCLUSIONS: The priorities for acutely admitted patients were ostensibly disease- and care-oriented and thus in line with the hospitals' own priorities. However, answers to why these were important were diverse, more personal, and often related to psychological well-being and relations. A large group of patients felt their treating doctor did not know what mattered most to them. Explicitly asking patients what is important and why, could help healthcare professionals to get to know the person behind the patient, which is essential in delivering patient-centred care.

TRIAL REGISTRATION: NTR (Netherlands Trial Register) NTR7538 .

Original languageEnglish
Article number474
JournalBMC Health Services Research
Volume21
Issue1
Number of pages11
ISSN1472-6963
DOIs
Publication statusPublished - May 2021

    Research areas

  • Adult, Hospitalization, Humans, Length of Stay, Netherlands, Qualitative Research, Research Design

See relations at Aarhus University Citationformats

ID: 229829220