Department of Economics and Business Economics

Prevalence of Autism Spectrum Disorder in 7-9-Year-Old Children in Denmark, Finland, France and Iceland: A Population-Based Registries Approach Within the ASDEU Project

Research output: Contribution to journal/Conference contribution in journal/Contribution to newspaperJournal articleResearchpeer-review

  • M Delobel-Ayoub, Registre des Handicaps de l'Enfant en Haute-Garonne, CHU Toulouse-Inserm U1027, Hôpital Paule de Viguier, 330 Av. de Grande Bretagne, 31059, Toulouse Cedex 9, France. delobel.m@chu-toulouse.fr.
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  • E Saemundsen, 1] deCODE Genetics/Amgen, Inc., Reykjavik, Iceland. [2] Faculty of Medicine, University of Iceland, Reykjavik, Iceland.
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  • M Gissler, Department of Neurobiology, Care Sciences and Society, Division of Family Medicine, Karolinska Institute, Stockholm, Sweden.
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  • A Ego, Inserm CIC U1406, Grenoble, France.
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  • I Moilanen, Research Center for Internal Medicine and Biocenter Oulu, University of Oulu, Oulu, Finland; Department of Internal Medicine, Oulu University Hospital, Oulu, Finland; Medical Research Center Oulu, Oulu University Hospital and University of Oulu, Oulu, Finland;
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  • H Ebeling, Research Center for Internal Medicine and Biocenter Oulu, University of Oulu, Oulu, Finland; Department of Internal Medicine, Oulu University Hospital, Oulu, Finland; Medical Research Center Oulu, Oulu University Hospital and University of Oulu, Oulu, Finland;
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  • V Rafnsson, 1] deCODE Genetics/Amgen, Inc., Reykjavik, Iceland. [2] Faculty of Medicine, University of Iceland, Reykjavik, Iceland.
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  • D Klapouszczak, CHU Toulouse, Registre des Handicaps de l'Enfant en Haute-Garonne, Toulouse, France.
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  • E Thorsteinsson, iPSYCH, Lundbeck Initiat Integrat Psychiat Res
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  • K M Arnaldsdóttir, Breidholt Service Centre, Reykjavík, Iceland.
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  • B Roge, CERPPS, Université Toulouse Jean-Jaurès, Toulouse, France.
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  • C Arnaud, CHU Toulouse, Registre des Handicaps de l'Enfant en Haute-Garonne, Toulouse, France.
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  • D Schendel

We estimated autism spectrum disorder (ASD) prevalence in 7-9 year-old children in 2015 using data from three nationwide health registry systems (Denmark, Finland, Iceland) and two French population-based regional registries. Prevalence ranged from 0.48% in South-East France to 3.13% in Iceland (South-West France: 0.73%, Finland: 0.77%, Denmark: 1.26%). Male/female ratios ranged from 3.3 in Finland to 5.4 in South-West France. Between 12% (Denmark) and 39% (South-West France) of cases were diagnosed with intellectual disability. The variations in population-based ASD prevalence across four European countries with universal health care practices likely reflect variation in detection, referral and diagnosis practices and autism awareness across these areas. Using established population-based data systems is an efficient approach to monitor ASD prevalence trends over time.

Original languageEnglish
JournalJournal of Autism and Developmental Disorders
Volume50
Issue3
Pages (from-to)949-959
Number of pages11
ISSN0162-3257
DOIs
Publication statusPublished - 2020

    Research areas

  • Autism, Epidemiology, Health information systems, Prevalence, Registries

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