TY - JOUR
T1 - Perspectives of international experts and the Danish citizens on the ‘relevant knowledge’ that citizens need for making informed choices about participation in cancer screening
T2 - Qualitative study
AU - Stokholm, Rikke Nicoline
AU - Kirkegaard, Pia
AU - Larsen, Mette Bach
AU - Lauridsen, Henrik Hein
AU - Stacey, Dawn
AU - Harper, Diane M.
AU - Sepucha, Karen
AU - McCaffery, Kirsten
AU - Reder, Maren
AU - Pignone, Michael
AU - Fransen, Mirjam
AU - Volk, Robert J.
AU - Wengström, Yvonne
AU - Edwards, Adrian
AU - Andersen, Berit
PY - 2025/1
Y1 - 2025/1
N2 - Objectives: This study aimed to investigate the perspectives of international experts and Danish citizens on relevant knowledge about population-based breast, colorectal and cervical cancer screening. Methods: This was a qualitative interview study with focus group interviews with experts and Danish citizens eligible for breast, colorectal and/or cervical cancer screening. Data were collected using semi-structured interview guides, audio-recorded and transcribed verbatim. A thematic analysis was conducted. Results: Participants were nine international experts from Germany, Canada, the USA, Sweden, the Netherlands and Australia, and 54 citizens from Denmark. Most citizens had 'adequate' or 'problematic' levels of health literacy. Themes that experts and citizens agreed on were: knowledge about the disease and symptoms, practical information about screening, benefits of screening, the option of non-participation and the importance of having numeric information of possible screening outcomes. Experts agreed on the importance of knowledge about the harms of screening, but only a minority of citizens considered this important. Conclusions: The experts and citizens disagreed on the relevance of knowledge about harms of screening and agreed on other relevant knowledge. Practice implications: What experts and citizens find important may not align when making informed decisions. Therefore, experts and citizens needs to be involved when developing questionnaires.
AB - Objectives: This study aimed to investigate the perspectives of international experts and Danish citizens on relevant knowledge about population-based breast, colorectal and cervical cancer screening. Methods: This was a qualitative interview study with focus group interviews with experts and Danish citizens eligible for breast, colorectal and/or cervical cancer screening. Data were collected using semi-structured interview guides, audio-recorded and transcribed verbatim. A thematic analysis was conducted. Results: Participants were nine international experts from Germany, Canada, the USA, Sweden, the Netherlands and Australia, and 54 citizens from Denmark. Most citizens had 'adequate' or 'problematic' levels of health literacy. Themes that experts and citizens agreed on were: knowledge about the disease and symptoms, practical information about screening, benefits of screening, the option of non-participation and the importance of having numeric information of possible screening outcomes. Experts agreed on the importance of knowledge about the harms of screening, but only a minority of citizens considered this important. Conclusions: The experts and citizens disagreed on the relevance of knowledge about harms of screening and agreed on other relevant knowledge. Practice implications: What experts and citizens find important may not align when making informed decisions. Therefore, experts and citizens needs to be involved when developing questionnaires.
KW - Breast cancer screening
KW - Cancer screening
KW - Cervical cancer screening
KW - Colorectal cancer screening
KW - Decision-making
KW - Informed choice
KW - Knowledge
UR - http://www.scopus.com/inward/record.url?scp=85207877446&partnerID=8YFLogxK
U2 - 10.1016/j.pec.2024.108479
DO - 10.1016/j.pec.2024.108479
M3 - Journal article
C2 - 39488032
AN - SCOPUS:85207877446
SN - 0738-3991
VL - 130
JO - Patient Education and Counseling
JF - Patient Education and Counseling
M1 - 108479
ER -