Patient and professional experiences of palliative care referral discussions from cancer services: A qualitative interview study

Research output: Contribution to journal/Conference contribution in journal/Contribution to newspaperJournal articleResearchpeer-review

DOI

  • Simon Pini, Academic Unit of Palliative Care, Leeds Institute of Health Sciences, School of Medicine, University of Leeds, United Kingdom
  • Julia Hackett, Martin House Research Centre, Social Policy Research Unit, University of York, United Kingdom
  • Sally Taylor, The Christie Hospital NHS Foundation Trust, Manchester, UK., United Kingdom
  • Hilary L Bekker
  • Suzanne Kite, Leeds Teaching Hospitals NHS Trust, United Kingdom
  • Michael I Bennett, Academic Unit of Palliative Care, Leeds Institute of Health Sciences, School of Medicine, University of Leeds, United Kingdom
  • Lucy Ziegler, Academic Unit of Palliative Care, Leeds Institute of Health Sciences, School of Medicine, University of Leeds, United Kingdom

OBJECTIVES: The aim of this paper was to identify current barriers, facilitators and experiences of raising and discussing palliative care with people with advanced cancer.

METHODS: Semi-structured interviews were conducted with patients with advanced cancer and healthcare professionals (HCPs). Patients were included who had and had not been referred to palliative care. Transcripts were analysed using framework analysis.

RESULTS: Twenty-four patients and eight HCPs participated. Two overarching themes and five sub-themes emerged: Theme one-referral process: timing and triggers, responsibility. Theme two-engagement: perception of treatment, prognosis and palliative care, psychological and emotional preparedness for discussion, and understanding how palliative care could benefit present and future care.

CONCLUSION: There is a need to identify suitable patients earlier in their cancer trajectory, address misconceptions about palliative care, treatment and prognosis, and better prepare patients and HCPs to have meaningful conversations about palliative care. Patients and HCPs need to establish and communicate the relevance of palliative care to the patient's current and future care, and be clear about the referral process.

Original languageEnglish
Article numbere13340
JournalEuropean Journal of Cancer Care
Volume30
Issue1
Number of pages10
ISSN0961-5423
DOIs
Publication statusPublished - Jan 2021
Externally publishedYes

    Research areas

  • advanced cancer, complex intervention development, interviews, palliative care, qualitative, shared decision-making, TRIAL, WORK, TEAM, PROVISION

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