Nursing roles and functions addressing relatives during in-hospital rehabilitation following stroke. Care needs and involvement

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Nursing roles and functions addressing relatives during in-hospital rehabilitation following stroke. Care needs and involvement. / Aadal, Lena; Angel, Sanne; Langhorn, Leanne; Pedersen, Birgitte Blicher; Dreyer, Pia.

In: Scandinavian Journal of Caring Sciences, Vol. 32, No. 2, 06.2018, p. 871-879.

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@article{ad546ebafdca4772bd05ecd2b4e21aec,
title = "Nursing roles and functions addressing relatives during in-hospital rehabilitation following stroke. Care needs and involvement",
abstract = "Rationale: In the last decades, length of stay of in-hospital rehabilitation of patients with stroke has been significantly reduced. Health authorities expect relatives to be at disposal to convey the knowledge of everyday life and to provide emotional as well as practical support in relation to the patient. Caregivers require nurse assistance, support and to be seen as an essential partner in the care giving process. However, the nurses do not perceive that teaching of relatives is a task they should routinely undertake. This might indicate an ambiguity between the relatives{\textquoteright} expectations and the actual contribution from nurses. Aim: This study describes nurses{\textquoteright} experienced roles and functions addressing the relatives of patients with stroke during in-hospital rehabilitation. Methodological design: A phenomenological hermeneutic approach influenced by Paul Ricoeur. In a secondary analysis focus group, interviews of 19 randomly selected nurses from three different hospital settings were interpreted in three levels. The study was conducted in accordance with the ethical guidelines for nursing research in the Nordic countries. Findings: The nurses expressed that they address the patient and the relatives and support the interaction between the patient and the relatives. Four themes occurred: the changed lives of relatives; shared life after stroke; noncooperating relatives; time for the relatives. Conclusion: Nurses experience their roles and functions addressing relatives after stroke as crucial, challenging and multifaceted. They acknowledged care needs of the relatives in their own right by addressing the relatives{\textquoteright} vulnerability during in-hospital rehabilitation characterised by an existential threat to the physical as well as the shared life. The focus on the needs of relatives considering their expected future role was experienced as conflicting with restricting time frames and a healthcare system focusing on the individual patient.",
keywords = "acquired brain injury, functions, in-hospital rehabilitation, interdisciplinary team, nurse, nursing, qualitative interviews, relatives, roles, stroke",
author = "Lena Aadal and Sanne Angel and Leanne Langhorn and Pedersen, {Birgitte Blicher} and Pia Dreyer",
year = "2018",
month = jun,
doi = "10.1111/scs.12518",
language = "English",
volume = "32",
pages = "871--879",
journal = "Scandinavian Journal of Caring Sciences",
issn = "0283-9318",
publisher = "Wiley-Blackwell Publishing Ltd.",
number = "2",

}

RIS

TY - JOUR

T1 - Nursing roles and functions addressing relatives during in-hospital rehabilitation following stroke. Care needs and involvement

AU - Aadal, Lena

AU - Angel, Sanne

AU - Langhorn, Leanne

AU - Pedersen, Birgitte Blicher

AU - Dreyer, Pia

PY - 2018/6

Y1 - 2018/6

N2 - Rationale: In the last decades, length of stay of in-hospital rehabilitation of patients with stroke has been significantly reduced. Health authorities expect relatives to be at disposal to convey the knowledge of everyday life and to provide emotional as well as practical support in relation to the patient. Caregivers require nurse assistance, support and to be seen as an essential partner in the care giving process. However, the nurses do not perceive that teaching of relatives is a task they should routinely undertake. This might indicate an ambiguity between the relatives’ expectations and the actual contribution from nurses. Aim: This study describes nurses’ experienced roles and functions addressing the relatives of patients with stroke during in-hospital rehabilitation. Methodological design: A phenomenological hermeneutic approach influenced by Paul Ricoeur. In a secondary analysis focus group, interviews of 19 randomly selected nurses from three different hospital settings were interpreted in three levels. The study was conducted in accordance with the ethical guidelines for nursing research in the Nordic countries. Findings: The nurses expressed that they address the patient and the relatives and support the interaction between the patient and the relatives. Four themes occurred: the changed lives of relatives; shared life after stroke; noncooperating relatives; time for the relatives. Conclusion: Nurses experience their roles and functions addressing relatives after stroke as crucial, challenging and multifaceted. They acknowledged care needs of the relatives in their own right by addressing the relatives’ vulnerability during in-hospital rehabilitation characterised by an existential threat to the physical as well as the shared life. The focus on the needs of relatives considering their expected future role was experienced as conflicting with restricting time frames and a healthcare system focusing on the individual patient.

AB - Rationale: In the last decades, length of stay of in-hospital rehabilitation of patients with stroke has been significantly reduced. Health authorities expect relatives to be at disposal to convey the knowledge of everyday life and to provide emotional as well as practical support in relation to the patient. Caregivers require nurse assistance, support and to be seen as an essential partner in the care giving process. However, the nurses do not perceive that teaching of relatives is a task they should routinely undertake. This might indicate an ambiguity between the relatives’ expectations and the actual contribution from nurses. Aim: This study describes nurses’ experienced roles and functions addressing the relatives of patients with stroke during in-hospital rehabilitation. Methodological design: A phenomenological hermeneutic approach influenced by Paul Ricoeur. In a secondary analysis focus group, interviews of 19 randomly selected nurses from three different hospital settings were interpreted in three levels. The study was conducted in accordance with the ethical guidelines for nursing research in the Nordic countries. Findings: The nurses expressed that they address the patient and the relatives and support the interaction between the patient and the relatives. Four themes occurred: the changed lives of relatives; shared life after stroke; noncooperating relatives; time for the relatives. Conclusion: Nurses experience their roles and functions addressing relatives after stroke as crucial, challenging and multifaceted. They acknowledged care needs of the relatives in their own right by addressing the relatives’ vulnerability during in-hospital rehabilitation characterised by an existential threat to the physical as well as the shared life. The focus on the needs of relatives considering their expected future role was experienced as conflicting with restricting time frames and a healthcare system focusing on the individual patient.

KW - acquired brain injury

KW - functions

KW - in-hospital rehabilitation

KW - interdisciplinary team

KW - nurse

KW - nursing

KW - qualitative interviews

KW - relatives

KW - roles

KW - stroke

UR - http://www.scopus.com/inward/record.url?scp=85053503849&partnerID=8YFLogxK

U2 - 10.1111/scs.12518

DO - 10.1111/scs.12518

M3 - Journal article

C2 - 28869654

AN - SCOPUS:85053503849

VL - 32

SP - 871

EP - 879

JO - Scandinavian Journal of Caring Sciences

JF - Scandinavian Journal of Caring Sciences

SN - 0283-9318

IS - 2

ER -