Mapping the empirical evidence on patient involvement interventions in patients with end-stage kidney disease making end-of-life care decisions: a scoping review protocol

Louise Engelbrecht Buur; Jeanette Finderup; Henning Søndergaard; Michell Kannegaard; Jens Kristian Madsen; Hilary Louise Bekker

doi:10.11124/JBIES-21-00090

Mapping the empirical evidence on patient involvement interventions in patients with end-stage kidney disease making end-of-life care decisions: a scoping review protocol

Louise Engelbrecht Buur^*, Jeanette Finderup, Henning Søndergaard, Michell Kannegaard, Jens Kristian Madsen, Hilary Louise Bekker

^*Corresponding author for this work

Research output: Contribution to journal/Conference contribution in journal/Contribution to newspaper › Review › Research › peer-review

2 Citations (Scopus)

Abstract

Objective:The objective of this scoping review is to investigate and map existing empirical evidence on patient involvement interventions helping patients with end-stage kidney disease to make end-of-life care decisions about kidney services.Introduction:Patients with end-stage kidney disease have a high disease burden and mortality rate. Despite this, kidney services differ in how they offer and integrate end-of-life care, if it is offered at all. Some countries have established advance care planning protocols to encourage patient involvement when offering end-of-life care options as part of end-stage kidney disease care. However, there is a limited understanding of the components of patient involvement interventions designed to support patients with end-stage kidney disease making decisions about end-of-life care.Inclusion criteria:The review will consider studies on patient involvement interventions concerning end-of-life care decisions for patients with end-stage kidney disease. A broad definition of patient involvement interventions will be used. Studies on interventions that do not involve patients or relatives will be excluded. The review will focus on interventions applied to kidney health care and other services, such as community-based health care.Methods:MEDLINE, Embase, Scopus, and CINAHL will be searched. The literature will be screened for inclusion by two independent reviewers. Data synthesis will be conducted through relational analysis investigating patient involvement interventions and relevant information in line with the review objective and questions. Data will be extracted and listed in the data extraction instruments, accompanied by a narrative summary describing how the results relate to the review objective.

Original language	English
Journal	JBI Evidence Synthesis
Volume	20
Issue	6
Pages (from-to)	1537-1544
Number of pages	8
ISSN	2689-8381
DOIs	https://doi.org/10.11124/JBIES-21-00090
Publication status	Published - Jun 2022

Keywords

advanced renal disease
intervention development
nephrology
palliative care
shared decisionmaking
Advance Care Planning
Decision Making
Review Literature as Topic
Humans
Patient Participation
Kidney Failure, Chronic
Terminal Care

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@article{2d92a1fdc3744d0ba3d5a76463e3ff36,

title = "Mapping the empirical evidence on patient involvement interventions in patients with end-stage kidney disease making end-of-life care decisions: a scoping review protocol",

abstract = "Objective:The objective of this scoping review is to investigate and map existing empirical evidence on patient involvement interventions helping patients with end-stage kidney disease to make end-of-life care decisions about kidney services.Introduction:Patients with end-stage kidney disease have a high disease burden and mortality rate. Despite this, kidney services differ in how they offer and integrate end-of-life care, if it is offered at all. Some countries have established advance care planning protocols to encourage patient involvement when offering end-of-life care options as part of end-stage kidney disease care. However, there is a limited understanding of the components of patient involvement interventions designed to support patients with end-stage kidney disease making decisions about end-of-life care.Inclusion criteria:The review will consider studies on patient involvement interventions concerning end-of-life care decisions for patients with end-stage kidney disease. A broad definition of patient involvement interventions will be used. Studies on interventions that do not involve patients or relatives will be excluded. The review will focus on interventions applied to kidney health care and other services, such as community-based health care.Methods:MEDLINE, Embase, Scopus, and CINAHL will be searched. The literature will be screened for inclusion by two independent reviewers. Data synthesis will be conducted through relational analysis investigating patient involvement interventions and relevant information in line with the review objective and questions. Data will be extracted and listed in the data extraction instruments, accompanied by a narrative summary describing how the results relate to the review objective.",

keywords = "advanced renal disease, intervention development, nephrology, palliative care, shared decisionmaking, Advance Care Planning, Decision Making, Review Literature as Topic, Humans, Patient Participation, Kidney Failure, Chronic, Terminal Care",

author = "Buur, {Louise Engelbrecht} and Jeanette Finderup and Henning S{\o}ndergaard and Michell Kannegaard and Madsen, {Jens Kristian} and Bekker, {Hilary Louise}",

note = "Copyright {\textcopyright} 2021 JBI.",

year = "2022",

month = jun,

doi = "10.11124/JBIES-21-00090",

language = "English",

volume = "20",

pages = "1537--1544",

journal = "JBI Evidence Synthesis",

issn = "2689-8381",

publisher = "Lippincott Williams and Wilkins",

number = "6",

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Mapping the empirical evidence on patient involvement interventions in patients with end-stage kidney disease making end-of-life care decisions: a scoping review protocol. / Buur, Louise Engelbrecht ; Finderup, Jeanette; Søndergaard, Henning et al.
In: JBI Evidence Synthesis, Vol. 20, No. 6, 06.2022, p. 1537-1544.

Research output: Contribution to journal/Conference contribution in journal/Contribution to newspaper › Review › Research › peer-review

TY - JOUR

T1 - Mapping the empirical evidence on patient involvement interventions in patients with end-stage kidney disease making end-of-life care decisions

T2 - a scoping review protocol

AU - Buur, Louise Engelbrecht

AU - Finderup, Jeanette

AU - Søndergaard, Henning

AU - Kannegaard, Michell

AU - Madsen, Jens Kristian

AU - Bekker, Hilary Louise

PY - 2022/6

Y1 - 2022/6

N2 - Objective:The objective of this scoping review is to investigate and map existing empirical evidence on patient involvement interventions helping patients with end-stage kidney disease to make end-of-life care decisions about kidney services.Introduction:Patients with end-stage kidney disease have a high disease burden and mortality rate. Despite this, kidney services differ in how they offer and integrate end-of-life care, if it is offered at all. Some countries have established advance care planning protocols to encourage patient involvement when offering end-of-life care options as part of end-stage kidney disease care. However, there is a limited understanding of the components of patient involvement interventions designed to support patients with end-stage kidney disease making decisions about end-of-life care.Inclusion criteria:The review will consider studies on patient involvement interventions concerning end-of-life care decisions for patients with end-stage kidney disease. A broad definition of patient involvement interventions will be used. Studies on interventions that do not involve patients or relatives will be excluded. The review will focus on interventions applied to kidney health care and other services, such as community-based health care.Methods:MEDLINE, Embase, Scopus, and CINAHL will be searched. The literature will be screened for inclusion by two independent reviewers. Data synthesis will be conducted through relational analysis investigating patient involvement interventions and relevant information in line with the review objective and questions. Data will be extracted and listed in the data extraction instruments, accompanied by a narrative summary describing how the results relate to the review objective.

AB - Objective:The objective of this scoping review is to investigate and map existing empirical evidence on patient involvement interventions helping patients with end-stage kidney disease to make end-of-life care decisions about kidney services.Introduction:Patients with end-stage kidney disease have a high disease burden and mortality rate. Despite this, kidney services differ in how they offer and integrate end-of-life care, if it is offered at all. Some countries have established advance care planning protocols to encourage patient involvement when offering end-of-life care options as part of end-stage kidney disease care. However, there is a limited understanding of the components of patient involvement interventions designed to support patients with end-stage kidney disease making decisions about end-of-life care.Inclusion criteria:The review will consider studies on patient involvement interventions concerning end-of-life care decisions for patients with end-stage kidney disease. A broad definition of patient involvement interventions will be used. Studies on interventions that do not involve patients or relatives will be excluded. The review will focus on interventions applied to kidney health care and other services, such as community-based health care.Methods:MEDLINE, Embase, Scopus, and CINAHL will be searched. The literature will be screened for inclusion by two independent reviewers. Data synthesis will be conducted through relational analysis investigating patient involvement interventions and relevant information in line with the review objective and questions. Data will be extracted and listed in the data extraction instruments, accompanied by a narrative summary describing how the results relate to the review objective.

KW - advanced renal disease

KW - intervention development

KW - nephrology

KW - palliative care

KW - shared decisionmaking

KW - Advance Care Planning

KW - Decision Making

KW - Review Literature as Topic

KW - Humans

KW - Patient Participation

KW - Kidney Failure, Chronic

KW - Terminal Care

U2 - 10.11124/JBIES-21-00090

DO - 10.11124/JBIES-21-00090

M3 - Review

C2 - 34930870

SN - 2689-8381

VL - 20

SP - 1537

EP - 1544

JO - JBI Evidence Synthesis

JF - JBI Evidence Synthesis

IS - 6

ER -

Mapping the empirical evidence on patient involvement interventions in patients with end-stage kidney disease making end-of-life care decisions: a scoping review protocol

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Keywords

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