Department of Economics and Business Economics

Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences

Research output: Contribution to journal/Conference contribution in journal/Contribution to newspaperJournal articleResearchpeer-review

  • Martina Micai, Research Coordination and Support Service
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  • Antonio Ciaramella, Research Coordination and Support Service
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  • Tommaso Salvitti, Research Coordination and Support Service
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  • Francesca Fulceri, Research Coordination and Support Service
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  • Laura Maria Fatta, Research Coordination and Support Service
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  • Luise Poustka, University Medical Center Göttingen
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  • Robert Diehm, Medical University of Vienna
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  • Georgi Iskrov, Institute for Rare Diseases
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  • Rumen Stefanov, Institute for Rare Diseases
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  • Quentin Guillon, CERPPS, Université Toulouse Jean-Jaurès, Toulouse, France.
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  • Bernadette Rogé, CERPPS, Université Toulouse Jean-Jaurès, Toulouse, France.
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  • Anthony Staines, Dublin City University
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  • Mary Rose Sweeney, Dublin City University
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  • Andrew Martin Boilson, Dublin City University
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  • Thora Leósdóttir, The State Diagnostic and Counselling Centre
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  • Evald Saemundsen, The State Diagnostic and Counselling Centre
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  • Irma Moilanen, Research Center for Internal Medicine and Biocenter Oulu, University of Oulu, Oulu, Finland; Department of Internal Medicine, Oulu University Hospital, Oulu, Finland; Medical Research Center Oulu, Oulu University Hospital and University of Oulu, Oulu, Finland;
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  • Hanna Ebeling, Research Center for Internal Medicine and Biocenter Oulu, University of Oulu, Oulu, Finland; Department of Internal Medicine, Oulu University Hospital, Oulu, Finland; Medical Research Center Oulu, Oulu University Hospital and University of Oulu, Oulu, Finland;
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  • Anneli Yliherva, Research Center for Internal Medicine and Biocenter Oulu, University of Oulu, Oulu, Finland; Department of Internal Medicine, Oulu University Hospital, Oulu, Finland; Medical Research Center Oulu, Oulu University Hospital and University of Oulu, Oulu, Finland;
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  • Mika Gissler, National Institute for Health and Welfare
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  • Tarja Parviainen, Finnish Association for Autism and Asperger's Syndrome
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  • Pekka Tani, University of Helsinki
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  • Rafal Kawa, Univ Warsaw Observ, Warsaw University Observatory
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  • Astrid Vicente, Center for Marine Biodiversity
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  • Célia Rasga, Center for Marine Biodiversity
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  • Magdalena Budişteanu, "Victor Babeş" National Institute for Research
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  • Ian Dale, The Centre for Autism
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  • Carol Povey, The Centre for Autism
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  • Noelia Flores, INICO - Instituto Universitario de Integración en La Comunidad University of Salamanca
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  • Cristina Jenaro, INICO - Instituto Universitario de Integración en La Comunidad University of Salamanca
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  • Maria Luisa Monroy, INICO - Instituto Universitario de Integración en La Comunidad University of Salamanca
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  • Patricia García Primo, Institute of Rare Diseases Research (Instituto de Investigación de Enfermedades Raras/IIER), & Consortium for Biomedical Research in Rare Diseases (Centro de Investigación Biomédica en Red de Enfermedades Raras/CIBERER), Carlos III Institute of Health (Instituto de Salud Carlos III), 28029, Madrid, Spain.
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  • Tony Charman, Kings Hlth Partners, University of London, Kings College London
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  • Susanne Cramer
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  • Christine Kloster Warberg
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  • Ricardo Canal-Bedia, INICO - Instituto Universitario de Integración en La Comunidad University of Salamanca
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  • Manuel Posada, Institute of Rare Diseases Research (Instituto de Investigación de Enfermedades Raras/IIER), & Consortium for Biomedical Research in Rare Diseases (Centro de Investigación Biomédica en Red de Enfermedades Raras/CIBERER), Carlos III Institute of Health (Instituto de Salud Carlos III), 28029, Madrid, Spain.
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  • Maria Luisa Scattoni, Research Coordination and Support Service
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  • Diana Schendel

The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services' use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults.

Original languageEnglish
JournalJournal of Autism and Developmental Disorders
Volume52
Issue4
Pages (from-to)1623-1639
ISSN0162-3257
DOIs
Publication statusPublished - Apr 2022

    Research areas

  • Adults, Autism Spectrum Disorder, Interventions, Services, Caregivers, European Union, Humans, Autism Spectrum Disorder/psychology, Adult, Autistic Disorder/psychology, Surveys and Questionnaires

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