Home-based COPD psychoeducation: A qualitative study of the patients' experiences

Research output: Contribution to journal/Conference contribution in journal/Contribution to newspaperJournal articleResearchpeer-review

  • D G Bove, Department of Pulmonary & Infectious Diseases, Copenhagen University Hospital, Nordsjælland, Dyrehavevej 29, 3400 Hillerød, Denmark. Electronic address: dorthe.gaby.bove.01@regionh.dk., Denmark
  • J Midtgaard, Institute of Public Health, Section of Social Medicine, University of Copenhagen, Copenhagen, Denmark; The University Hospital Centre for Health Research, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark. Electronic address: julie@ucsf.dk., Denmark
  • G Kaldan, Department of Pulmonary & Infectious Diseases, Copenhagen University Hospital, Nordsjælland, Dyrehavevej 29, 3400 Hillerød, Denmark., Denmark
  • D Overgaard, Department of Nursing, Metropolitan University College, Copenhagen, Denmark. Electronic address: doov@phmetropol.dk., Denmark
  • K Lomborg

OBJECTIVE: To explore the patients' experiences of a minimal home-based psychoeducative intervention aimed at reducing symptoms of anxiety.

BACKGROUND: In a randomised controlled trial (RCT) we have shown that a minimal home-based and nurse-led psychoeducative intervention has a significant effect in reducing symptoms of anxiety and increasing mastery of dyspnoea in patients with advanced chronic obstructive pulmonary disease (COPD). However, we do not know if the intervention is perceived as meaningful and applicable in the everyday life of patients with advanced COPD.

METHODS: We conducted a nested post-trial qualitative study. The study methodology was Interpretive Description as described by Thorne. The study was based on semi-structured interviews with twenty patients from the RCT intervention group i.g. home-living people with a diagnosis of advanced COPD and symptoms of anxiety.

RESULTS: The patients described that making anxiety visible makes it manageable and provides relief. The patients described a feeling of being alone with managing anxiety and dyspnea, and the only way to gain in control of their cognitions was to mobilise internal resources. The intervention was appreciated by patients because it strengthened their internal resources. Further, it was perceived as a relief that the intervention insisted on talking about anxiety and thereby invited patients to verbalise worries related to end-of-life.

CONCLUSION: This study offers knowledge to better understand the patients' experiences of a psychoeducative intervention. The intervention was perceived as comprehensible and applicable in the patients' everyday life and contributed to the patients' ability to self-manage their condition.

Original languageEnglish
JournalJournal of Psychosomatic Research
Volume98
Pages (from-to)71-77
Number of pages7
ISSN0022-3999
DOIs
Publication statusPublished - Jul 2017

    Research areas

  • Aged, Aged, 80 and over, Anxiety, Cognition, Female, Home Care Services, Humans, Male, Middle Aged, Pulmonary Disease, Chronic Obstructive, Qualitative Research, Journal Article, CBT, Self-management

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