Exploring the needs of patients with malignant brain tumour - A case study of participating in an Integrated Brain Cancer Pathway

Research output: Book/anthology/dissertation/reportPh.D. thesis

Patients who are being diagnosed with cancer in the brain may often experience that the tumour and treatment affects the brain function. The tumour may lead to an increased intracranial pressure but may also locally impact the brain function. The related symptoms may be impaired vision, hearing, memory or concentration influencing the patients' ability to communicate, understand and remember the information received in the accelerated cancer pathway.
The purpose of this study was to explore and develop knowledge about the patients' experiences and needs during their hospital stay, related to information, communication and support in the early phase of the brain cancer pathway.
Using a longitudinal case study design, patients were followed throughout their pathway across the involved hospital departments.
The findings reveal that patients suffering from cancer in the brain have very complex care needs and experience a particular state of vulnerability and may find it difficult to ask for help from the health care providers. Furthermore, the study showed how the organisation of the Integrated Brain Cancer Pathway may lead to fragmented care and communication. The new knowledge regarding the patient perspective may be used to further develop the Integrated Brain Cancer Pathway.
Original languageDanish
Publication statusPublished - 2018

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