Department of Economics and Business Economics

Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives

Research output: Contribution to journal/Conference contribution in journal/Contribution to newspaperJournal articleResearchpeer-review

  • Álvaro Bejarano-Martín, Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, 37008, Salamanca, Spain.
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  • Ricardo Canal-Bedia, Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, 37008, Salamanca, Spain. rcanal@usal.es.
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  • María Magán-Maganto, Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, 37008, Salamanca, Spain.
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  • Clara Fernández-Álvarez, Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, 37008, Salamanca, Spain.
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  • María Victoria Cilleros-Martín, Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, 37008, Salamanca, Spain.
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  • María Cruz Sánchez-Gómez, Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, 37008, Salamanca, Spain.
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  • Patricia García-Primo, Research Institute for Developmental Medicine, Johannes Kepler University, Linz, Austria.
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  • Mary Rose-Sweeney, School of Nursing and Human Sciences, Dublin City University, Glasnevin, Dublin, Ireland.
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  • Andrew Boilson, School of Nursing and Human Sciences, Dublin City University, Glasnevin, Dublin, Ireland.
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  • Renata Linertová, Canary Island Foundation for Health Research (Fundación Canaria de Investigación Sanitaria/FUNCANIS) and Health Service Research Network for Chronic Diseases (Red de Investigación en Servicios de Salud en Enfermedades Crónicas/REDISSEC), Tenerife, Spain.
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  • Herbert Roeyers, Department of Experimental Clinical and Health Psychology, Ghent University, Ghent, Belgium.
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  • Sara Van der Paelt, Department of Experimental Clinical and Health Psychology, Ghent University, Ghent, Belgium.
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  • Diana Schendel
  • Christine Warberg, Big Data Centre for Environment and Health, Aarhus University, Aarhus, Denmark; Department of Public Health, Aarhus University, Aarhus, Denmark.
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  • Susanne Cramer
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  • Antonio Narzisi, IRCCS Stella Maris Foundation, Pisa, Italy.
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  • Filippo Muratori, IRCCS Stella Maris Foundation, Pisa, Italy.
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  • María Luisa Scattoni, Research Co-ordination and Support Service, Istituto Superiore di Sanità Viale Regina Elena 299, 00161, Rome, Italy.
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  • Irma Moilanen, Research Center for Internal Medicine and Biocenter Oulu, University of Oulu, Oulu, Finland; Department of Internal Medicine, Oulu University Hospital, Oulu, Finland; Medical Research Center Oulu, Oulu University Hospital and University of Oulu, Oulu, Finland;
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  • Anneli Yliherva, Child Language Research Center, Logopedics, Faculty of Humanities, University of Oulu, Oulu, Finland.
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  • Evald Saemundsen, State Diagnostic and Counselling Centre, Kópavogur, Iceland.
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  • Sigríður Loa Jónsdóttir, State Diagnostic and Counselling Centre, Kópavogur, Iceland.
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  • Magdalena Efrim-Budisteanu, Victor Babes - National Institute of Pathology, Bucharest, Romania.
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  • Aurora Arghir, Victor Babes - National Institute of Pathology, Bucharest, Romania.
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  • Sorina Mihaela Papuc, Victor Babes - National Institute of Pathology, Bucharest, Romania.
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  • Astrid Vicente, Instituto Nacional de Saúde Doutor Ricardo Jorge, 1649-016, Lisbon, Portugal.
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  • Celia Rasga, Instituto Nacional de Saúde Doutor Ricardo Jorge, 1649-016, Lisbon, Portugal.
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  • Bernadette Rogé, CERPPS, Université Toulouse Jean-Jaurès, Toulouse, France.
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  • Quentin Guillon, CERPPS, Université Toulouse Jean-Jaurès, Toulouse, France.
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  • Sophie Baduel, CERPPS, Université Toulouse Jean-Jaurès, Toulouse, France.
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  • Johanna Xenia Kafka, Department of Child and Adolescent Psychiatry, Medical University of Vienna, Vienna, Austria.
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  • Luise Poustka, Department of Child and Adolescent Psychiatry and Psychotherapy, University Medical Centre Göttingen, Göttingen, Germany.
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  • Oswald D Kothgassner, Department of Child and Adolescent Psychiatry, Medical University of Vienna, Vienna, Austria.
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  • Rafal Kawa, Faculty of Psychology, University of Warsaw, Warsaw, Poland.
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  • Ewa Pisula, Faculty of Psychology, University of Warsaw, Warsaw, Poland.
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  • Tracey Sellers, National Autistic Society (NAS), London, UK.
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  • Manuel Posada de la Paz, Institute of Rare Diseases Research (Instituto de Investigación de Enfermedades Raras/IIER), & Consortium for Biomedical Research in Rare Diseases (Centro de Investigación Biomédica en Red de Enfermedades Raras/CIBERER), Carlos III Institute of Health (Instituto de Salud Carlos III), 28029, Madrid, Spain.

Early services for ASD need to canvas the opinions of both parents and professionals. These opinions are seldom compared in the same research study. This study aims to ascertain the views of families and professionals on early detection, diagnosis and intervention services for young children with ASD. An online survey compiled and analysed data from 2032 respondents across 14 European countries (60.9% were parents; 39.1% professionals). Using an ordinal scale from 1 to 7, parents' opinions were more negative (mean = 4.6; SD 2.2) compared to those of professionals (mean = 4.9; SD 1.5) when reporting satisfaction with services. The results suggest services should take into account child's age, delays in accessing services, and active stakeholders' participation when looking to improve services.

Original languageEnglish
JournalJournal of Autism and Developmental Disorders
Volume50
Issue9
Pages (from-to)3380-3394
Number of pages15
ISSN0162-3257
DOIs
Publication statusPublished - 2020

    Research areas

  • Autism spectrum disorder, Diagnosis, Early detection, Mental health services, Patient satisfaction, Survey

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