Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases

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Standard

Danish respiratory society position paper : palliative care in patients with chronic progressive non-malignant lung diseases. / Marsaa, Kristoffer; Gundestrup, Svend; Jensen, Jens Ulrik et al.

In: European Clinical Respiratory Journal, Vol. 5, No. 1, 1530029, 01.01.2018.

Research output: Contribution to journal/Conference contribution in journal/Contribution to newspaperReviewResearchpeer-review

Harvard

Marsaa, K, Gundestrup, S, Jensen, JU, Lange, P, Løkke, A, Roberts, NB, Shaker, SB, Sørensen, AR, Titlestad, IL, Thomsen, LH, Weinreich, UM, Bendstrup, E & Wilcke, T 2018, 'Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases', European Clinical Respiratory Journal, vol. 5, no. 1, 1530029. https://doi.org/10.1080/20018525.2018.1530029

APA

Marsaa, K., Gundestrup, S., Jensen, J. U., Lange, P., Løkke, A., Roberts, N. B., Shaker, S. B., Sørensen, A. R., Titlestad, I. L., Thomsen, L. H., Weinreich, U. M., Bendstrup, E., & Wilcke, T. (2018). Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases. European Clinical Respiratory Journal, 5(1), [1530029]. https://doi.org/10.1080/20018525.2018.1530029

CBE

Marsaa K, Gundestrup S, Jensen JU, Lange P, Løkke A, Roberts NB, Shaker SB, Sørensen AR, Titlestad IL, Thomsen LH, et al. 2018. Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases. European Clinical Respiratory Journal. 5(1):Article 1530029. https://doi.org/10.1080/20018525.2018.1530029

MLA

Vancouver

Marsaa K, Gundestrup S, Jensen JU, Lange P, Løkke A, Roberts NB et al. Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases. European Clinical Respiratory Journal. 2018 Jan 1;5(1):1530029. doi: 10.1080/20018525.2018.1530029

Author

Marsaa, Kristoffer ; Gundestrup, Svend ; Jensen, Jens Ulrik et al. / Danish respiratory society position paper : palliative care in patients with chronic progressive non-malignant lung diseases. In: European Clinical Respiratory Journal. 2018 ; Vol. 5, No. 1.

Bibtex

@article{74ffdef23a8e4d93bf14e41f3f75a2c9,
title = "Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases",
abstract = "Background: Chronic non-malignant lung diseases such as chronic obstructive pulmonary disease (COPD) and interstitial lung diseases (ILD) result in reduced quality of life (QoL), a high symptom burden and reduced survival. Patients with chronic non-malignant lung disease often have limited access to palliative care. The symptom burden and the QoL of these patients resembles patients with cancer and the general palliative approach is similar. However, the disease trajectory is often slow and unpredictable, and the palliative effort must be built on accessibility, continuity and professional competences. The Danish Health Authority as well as the WHO recommends that there is access to palliative care for all patients with life-threatening diseases regardless of diagnosis. In 2011, the Danish Health Authority requested that the national medical societies would to formulate guidelines for palliation. Methods: In 2015, a group of members of the Danish Respiratory Society (DRS) was appointed for this purpose. It was composed of experienced ILD and COPD researchers as well as clinicians from different parts of Denmark. A literature review was made, a draft was prepared, and all recommendations were agreed upon unanimously. Results: The Danish version of the position paper was finally submitted for review and accepted by all members of DRS. Conclusion: In this position paper we provide recommendations on the terminology of chronic and terminal lung failure, rehabilitation and palliative care, advanced care planning, informal caregivers and bereavement, symptom management, the imminently dying patient, and organization of palliative care for patients with chronic non-malignant lung diseases.",
keywords = "chronic lung failure, end-of-life, lung disease, non-malignant, Palliation, terminal lung failure",
author = "Kristoffer Marsaa and Svend Gundestrup and Jensen, {Jens Ulrik} and Peter Lange and Anders L{\o}kke and Roberts, {Nassim Bazeghi} and Shaker, {Saher Burhan} and S{\o}rensen, {Anita Rath} and Titlestad, {Ingrid Louise} and Thomsen, {Laura Hohw{\"u}} and Weinreich, {Ulla M{\o}ller} and Elisabeth Bendstrup and Torgny Wilcke",
note = "Publisher Copyright: {\textcopyright} 2018, {\textcopyright} 2018 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.",
year = "2018",
month = jan,
day = "1",
doi = "10.1080/20018525.2018.1530029",
language = "English",
volume = "5",
journal = "European Clinical Respiratory Journal",
issn = "2001-8525",
publisher = "Taylor & Francis",
number = "1",

}

RIS

TY - JOUR

T1 - Danish respiratory society position paper

T2 - palliative care in patients with chronic progressive non-malignant lung diseases

AU - Marsaa, Kristoffer

AU - Gundestrup, Svend

AU - Jensen, Jens Ulrik

AU - Lange, Peter

AU - Løkke, Anders

AU - Roberts, Nassim Bazeghi

AU - Shaker, Saher Burhan

AU - Sørensen, Anita Rath

AU - Titlestad, Ingrid Louise

AU - Thomsen, Laura Hohwü

AU - Weinreich, Ulla Møller

AU - Bendstrup, Elisabeth

AU - Wilcke, Torgny

N1 - Publisher Copyright: © 2018, © 2018 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.

PY - 2018/1/1

Y1 - 2018/1/1

N2 - Background: Chronic non-malignant lung diseases such as chronic obstructive pulmonary disease (COPD) and interstitial lung diseases (ILD) result in reduced quality of life (QoL), a high symptom burden and reduced survival. Patients with chronic non-malignant lung disease often have limited access to palliative care. The symptom burden and the QoL of these patients resembles patients with cancer and the general palliative approach is similar. However, the disease trajectory is often slow and unpredictable, and the palliative effort must be built on accessibility, continuity and professional competences. The Danish Health Authority as well as the WHO recommends that there is access to palliative care for all patients with life-threatening diseases regardless of diagnosis. In 2011, the Danish Health Authority requested that the national medical societies would to formulate guidelines for palliation. Methods: In 2015, a group of members of the Danish Respiratory Society (DRS) was appointed for this purpose. It was composed of experienced ILD and COPD researchers as well as clinicians from different parts of Denmark. A literature review was made, a draft was prepared, and all recommendations were agreed upon unanimously. Results: The Danish version of the position paper was finally submitted for review and accepted by all members of DRS. Conclusion: In this position paper we provide recommendations on the terminology of chronic and terminal lung failure, rehabilitation and palliative care, advanced care planning, informal caregivers and bereavement, symptom management, the imminently dying patient, and organization of palliative care for patients with chronic non-malignant lung diseases.

AB - Background: Chronic non-malignant lung diseases such as chronic obstructive pulmonary disease (COPD) and interstitial lung diseases (ILD) result in reduced quality of life (QoL), a high symptom burden and reduced survival. Patients with chronic non-malignant lung disease often have limited access to palliative care. The symptom burden and the QoL of these patients resembles patients with cancer and the general palliative approach is similar. However, the disease trajectory is often slow and unpredictable, and the palliative effort must be built on accessibility, continuity and professional competences. The Danish Health Authority as well as the WHO recommends that there is access to palliative care for all patients with life-threatening diseases regardless of diagnosis. In 2011, the Danish Health Authority requested that the national medical societies would to formulate guidelines for palliation. Methods: In 2015, a group of members of the Danish Respiratory Society (DRS) was appointed for this purpose. It was composed of experienced ILD and COPD researchers as well as clinicians from different parts of Denmark. A literature review was made, a draft was prepared, and all recommendations were agreed upon unanimously. Results: The Danish version of the position paper was finally submitted for review and accepted by all members of DRS. Conclusion: In this position paper we provide recommendations on the terminology of chronic and terminal lung failure, rehabilitation and palliative care, advanced care planning, informal caregivers and bereavement, symptom management, the imminently dying patient, and organization of palliative care for patients with chronic non-malignant lung diseases.

KW - chronic lung failure

KW - end-of-life

KW - lung disease

KW - non-malignant

KW - Palliation

KW - terminal lung failure

UR - http://www.scopus.com/inward/record.url?scp=85064966563&partnerID=8YFLogxK

U2 - 10.1080/20018525.2018.1530029

DO - 10.1080/20018525.2018.1530029

M3 - Review

AN - SCOPUS:85064966563

VL - 5

JO - European Clinical Respiratory Journal

JF - European Clinical Respiratory Journal

SN - 2001-8525

IS - 1

M1 - 1530029

ER -