Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases

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  • Kristoffer Marsaa, University of Copenhagen
  • ,
  • Svend Gundestrup, University of Copenhagen
  • ,
  • Jens Ulrik Jensen, University of Copenhagen
  • ,
  • Peter Lange
  • Anders Løkke, Aarhus University
  • ,
  • Nassim Bazeghi Roberts, University of Copenhagen
  • ,
  • Saher Burhan Shaker, University of Copenhagen
  • ,
  • Anita Rath Sørensen, Aarhus University
  • ,
  • Ingrid Louise Titlestad, University of Southern Denmark
  • ,
  • Laura Hohwü Thomsen, University of Copenhagen
  • ,
  • Ulla Møller Weinreich, Aalborg University
  • ,
  • Elisabeth Bendstrup
  • Torgny Wilcke, University of Copenhagen

Background: Chronic non-malignant lung diseases such as chronic obstructive pulmonary disease (COPD) and interstitial lung diseases (ILD) result in reduced quality of life (QoL), a high symptom burden and reduced survival. Patients with chronic non-malignant lung disease often have limited access to palliative care. The symptom burden and the QoL of these patients resembles patients with cancer and the general palliative approach is similar. However, the disease trajectory is often slow and unpredictable, and the palliative effort must be built on accessibility, continuity and professional competences. The Danish Health Authority as well as the WHO recommends that there is access to palliative care for all patients with life-threatening diseases regardless of diagnosis. In 2011, the Danish Health Authority requested that the national medical societies would to formulate guidelines for palliation. Methods: In 2015, a group of members of the Danish Respiratory Society (DRS) was appointed for this purpose. It was composed of experienced ILD and COPD researchers as well as clinicians from different parts of Denmark. A literature review was made, a draft was prepared, and all recommendations were agreed upon unanimously. Results: The Danish version of the position paper was finally submitted for review and accepted by all members of DRS. Conclusion: In this position paper we provide recommendations on the terminology of chronic and terminal lung failure, rehabilitation and palliative care, advanced care planning, informal caregivers and bereavement, symptom management, the imminently dying patient, and organization of palliative care for patients with chronic non-malignant lung diseases.

Original languageEnglish
Article number1530029
JournalEuropean Clinical Respiratory Journal
Volume5
Issue1
ISSN2001-8525
DOIs
Publication statusPublished - 1 Jan 2018

Bibliographical note

Publisher Copyright:
© 2018, © 2018 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.

    Research areas

  • chronic lung failure, end-of-life, lung disease, non-malignant, Palliation, terminal lung failure

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