Adherence to behavioural interventions in multiple sclerosis: Follow-up meeting report (AD@MS-2)

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  • Christoph Heesen, Institute of Neuroimmunology and Clinical MS Research (inims) and Department of Neurology, UMC Hamburg Eppendorf, Germany.
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  • Jared Bruce, University of Missouri - Kansas City, Department of Psychology, USA.
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  • Robert Gearing, Department of Epidemiology, Columbia University, New York, NY, USA.
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  • Rona Moss-Morris
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  • John Weinmann, Health Psychology Section, Psychology Department, Institute of Psychiatry, Psychology and Neuroscience, KCL, Guy's Hospital Campus London, UK.
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  • Paivi Hamalainen, Director Masku Neurological Rehabilitation Centre, Finland.
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  • Robert Motl, Department of Kinesiology and Community Health, University of Illinois at Urbana-Champaign Urbana, IL, USA ; Department of English, University of Illinois at Urbana-Champaign Urbana, IL, USA.
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  • Ulrik Dalgas
  • Daphne Kos, Department of Rehabilitation Sciences, KU Leuven and Department of Health and Social Care, AP University College Antwerp, Belgium.
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  • Franceso Visioli, IMDEA-Food, Madrid, Spain; University of Padova, Italy.
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  • Peter Feys, 1 REVAL - Rehabilitation Research Research Center-BIOMED, Biomedical Research Institute, Faculty of Medicine and Life Sciences, Hasselt University, Hasselt, Belgium.
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  • Alessandra Solari, Neuroepidemiology Unit, Foundation Neurological Institute C. Besta, Milan, Italy.
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  • Marcia Finlayson, School of Rehabilitation Therapy, Faculty of Health Sciences, Queen's University, Kingston, Canada.
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  • Lina Eliasson, Atlantis Healthcare, Summit, USA; Centre for Haematology, Imperial College London, Hammersmith Hospital, UK.
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  • Vicki Matthews, MS Trust, Letchworth, UK.
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  • Angeliki Bogossian, Health Psychology Section, Psychology Department, Institute of Psychiatry, Psychology and Neuroscience, KCL, Guy's Hospital Campus London, UK.
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  • Katrin Liethmann, Institute of Neuroimmunology and Multiple Sclerosis and Department of Neurology, UMC Hamburg Eppendorf, Germany.
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  • Sascha Köpke, Institute for Social Medicine and Epidemiology, University of Lübeck, Lübeck, Germany.
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  • Paul Bissell, Section of Public Health, School of Health and Related Research (ScHARR), The University of Sheffield, UK.

After an initial meeting in 2013 that reviewed adherence to disease modifying therapy, the AD@MS group conducted a follow-up meeting in 2014 that examined adherence to behavioural interventions in MS (e.g. physical activity, diet, psychosocial interventions). Very few studies have studied adherence to behavioural interventions in MS. Outcomes beyond six months are lacking, as well as implementation work in the community. Psychological interventions need to overcome stigma and other barriers to facilitate initiation and maintenance of behaviour change. A focus group concentrated on physical activity and exercise as one major behavioural intervention domain in MS. The discussion revealed that patients are confronted with multiple challenges when attempting to regularly engage in physical activity. Highlighted needs for future research included an improved understanding of patients' and health experts' knowledge and attitudes towards physical activity as well as a need for longitudinal research that investigates exercise persistence.

Original languageEnglish
JournalMultiple sclerosis journal - experimental, translational and clinical
Volume1
Pages (from-to)1-4
Number of pages4
ISSN2055-2173
DOIs
Publication statusPublished - 1 Sep 2015

    Research areas

  • Journal Article, multiple sclerosis, rehabilitation, adherence, behavioural interventions, exercise, quality of life

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