A Parkinson care-coordinator may make a difference: A scoping review on multi-sectoral integrated care initiatives for people living with Parkinson's disease and their caregivers

Louise Buus Vester, Anita Haahr, Tove Lise Nielsen, Sandra Bartolomeu Pires, Mari Carmen Portillo

Research output: Contribution to journal/Conference contribution in journal/Contribution to newspaperJournal articleResearchpeer-review

Abstract

Objective: To identify multi-sectoral integrated care initiatives for people with Parkinson's disease and caregivers. Method: Following the Matrix Method we created a synthesis of literature across methodological approaches. The search was conducted in four databases until June 2022, and included studies focusing on multi-sectoral integrated care initiatives, and how they helped people with Parkinson's disease and caregivers in everyday living. Results: The search yielded 5921 articles of which nine were included. We identified four topics describing characteristics of multi-sectoral integrated care initiatives: 1) Peer-support, 2) Personalised care plan, 3) One-off initiatives limited in time and 4) Presence of a coordinator. And four topics describing how the initiatives helped in everyday living: 1) Confidence, trust and support, 2) Positive changes in health outcomes, 3) Quality of life, coping skills & psychosocial adjustment, and 4) A strengthened multi-agent collaboration and personalised assistance. Conclusion: Multi-sectoral integrated care initiatives should be ongoing offers, and include a Parkinson care-coordinator, who can enhance multi-sectoral communication and an individualised approach to information about resources responsive to evolving needs at different disease stages. Practice implications: Initiatives should be multidisciplinary, multi-sectoral and aimed at people with Parkinson's disease and caregivers, preferably facilitated by a care-coordinator to promote cross-sectoral communication.

Original languageEnglish
Article number107931
JournalPatient Education and Counseling
Volume116
ISSN0738-3991
DOIs
Publication statusPublished - Nov 2023

Keywords

  • Caregiver
  • Integrated care
  • Intervention
  • Multi-sectoral
  • Multidisciplinary
  • Parkinson's disease
  • Delivery of Health Care, Integrated
  • Humans
  • Parkinson Disease/therapy
  • Caregivers/psychology
  • Quality of Life/psychology
  • Adaptation, Psychological

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