TY - JOUR
T1 - A Parkinson care-coordinator may make a difference
T2 - A scoping review on multi-sectoral integrated care initiatives for people living with Parkinson's disease and their caregivers
AU - Buus Vester, Louise
AU - Haahr, Anita
AU - Nielsen, Tove Lise
AU - Pires, Sandra Bartolomeu
AU - Portillo, Mari Carmen
PY - 2023/11
Y1 - 2023/11
N2 - Objective: To identify multi-sectoral integrated care initiatives for people with Parkinson's disease and caregivers. Method: Following the Matrix Method we created a synthesis of literature across methodological approaches. The search was conducted in four databases until June 2022, and included studies focusing on multi-sectoral integrated care initiatives, and how they helped people with Parkinson's disease and caregivers in everyday living. Results: The search yielded 5921 articles of which nine were included. We identified four topics describing characteristics of multi-sectoral integrated care initiatives: 1) Peer-support, 2) Personalised care plan, 3) One-off initiatives limited in time and 4) Presence of a coordinator. And four topics describing how the initiatives helped in everyday living: 1) Confidence, trust and support, 2) Positive changes in health outcomes, 3) Quality of life, coping skills & psychosocial adjustment, and 4) A strengthened multi-agent collaboration and personalised assistance. Conclusion: Multi-sectoral integrated care initiatives should be ongoing offers, and include a Parkinson care-coordinator, who can enhance multi-sectoral communication and an individualised approach to information about resources responsive to evolving needs at different disease stages. Practice implications: Initiatives should be multidisciplinary, multi-sectoral and aimed at people with Parkinson's disease and caregivers, preferably facilitated by a care-coordinator to promote cross-sectoral communication.
AB - Objective: To identify multi-sectoral integrated care initiatives for people with Parkinson's disease and caregivers. Method: Following the Matrix Method we created a synthesis of literature across methodological approaches. The search was conducted in four databases until June 2022, and included studies focusing on multi-sectoral integrated care initiatives, and how they helped people with Parkinson's disease and caregivers in everyday living. Results: The search yielded 5921 articles of which nine were included. We identified four topics describing characteristics of multi-sectoral integrated care initiatives: 1) Peer-support, 2) Personalised care plan, 3) One-off initiatives limited in time and 4) Presence of a coordinator. And four topics describing how the initiatives helped in everyday living: 1) Confidence, trust and support, 2) Positive changes in health outcomes, 3) Quality of life, coping skills & psychosocial adjustment, and 4) A strengthened multi-agent collaboration and personalised assistance. Conclusion: Multi-sectoral integrated care initiatives should be ongoing offers, and include a Parkinson care-coordinator, who can enhance multi-sectoral communication and an individualised approach to information about resources responsive to evolving needs at different disease stages. Practice implications: Initiatives should be multidisciplinary, multi-sectoral and aimed at people with Parkinson's disease and caregivers, preferably facilitated by a care-coordinator to promote cross-sectoral communication.
KW - Caregiver
KW - Integrated care
KW - Intervention
KW - Multi-sectoral
KW - Multidisciplinary
KW - Parkinson's disease
KW - Delivery of Health Care, Integrated
KW - Humans
KW - Parkinson Disease/therapy
KW - Caregivers/psychology
KW - Quality of Life/psychology
KW - Adaptation, Psychological
U2 - 10.1016/j.pec.2023.107931
DO - 10.1016/j.pec.2023.107931
M3 - Journal article
C2 - 37604024
AN - SCOPUS:85168475673
SN - 0738-3991
VL - 116
JO - Patient Education and Counseling
JF - Patient Education and Counseling
M1 - 107931
ER -