Research

My research field is neuromuscular rehabilitation. The purpose of the research is to work for a better life for people with neuromuscular diseases and their relatives. The neuromuscular diseases including ALS (Amyotrophic lateral sclerosis) are complex and often have a rapid progression, leading to reduced functioning.  The purpose is therefore to investigate the specific challenges these people experience, to be able to target specialized rehabilitation interventions.

Profile

With a background in nursing and public health science, my research is concerned with ensuring equality in health and often focuses on cross-sectoral challenges.

Commissioned

The purpose of my research is to work for a better life for people with neuromuscular diseases and their relatives. We conduct research with a high degree of user involvement and often have people with neuromuscular diseases involved in projects from start to finish. This strengthens the relevance of the research. It is important that the research can be used by researchers, students, health professionals, politicians and the patient organization Muskelsvindfonden.

Cooperation and dissemination

I collaborate closely with people with neuromuscular diseases and national and international researchers, clinicians, and students from my professional network. I perceive knowledge sharing as qualifying for the research, and I find collaborations beneficial in larger contexts nationally and internationally for the benefit of people in need of rehabilitation.

Teaching

I teach health promotion, prevention and rehabilitation and it motivates me greatly that the research is communicated and applied through teaching and supervision of students. Knowledge about interdisciplinary and cross-sectoral efforts and models for people with neuromuscular diseases can be applied both to the target group and to other groups with chronic disease.

Job responsibilities

Rehabilitation, neuromuscular diseases, muscular dystrophy, ALS (amyotrophic lateral sclerosis), cross-sectorial collaboration, multidisciplinary collaboration, patient and public involvement, cancer etc.