Workforce attachment after a congenital long QT syndrome diagnosis: a Danish nationwide study

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  • Camilla H B Jespersen, Københavns Universitet
  • ,
  • Jawad Haider Butt, Københavns Universitet
  • ,
  • Johanna Krøll, Københavns Universitet
  • ,
  • Bo Gregers Winkel, Københavns Universitet
  • ,
  • Jørgen K Kanters, Københavns Universitet
  • ,
  • Gunnar Gislason, Københavns Universitet, The Danish Heart Foundation
  • ,
  • Christian Torp-Pedersen, Københavns Universitet
  • ,
  • Henning Bundgaard, Københavns Universitet
  • ,
  • Henrik Kjærulf Jensen
  • Lars Køber, Københavns Universitet
  • ,
  • Jacob Tfelt-Hansen, Københavns Universitet
  • ,
  • Peter E Weeke, Københavns Universitet

OBJECTIVE: To examine workforce attachment among patients with congenital long QT syndrome (cLQTS) following diagnosis and identify factors associated with workforce attachment.

METHODS AND RESULTS: In this nationwide cohort study, all patients diagnosed with cLQTS in Denmark between 1996 and 2016 aged 18-60 years at diagnosis were identified using nationwide registries. Patients attached to the workforce at diagnosis were included. Attachment to the workforce 1 year after cLQTS diagnosis was examined and compared with a background population matched 1:4 on age, sex and employment status. Multiple logistic regression was performed to identify factors associated with 1-year workforce detachment among patients with cLQTS. 298 patients fulfilled the inclusion criteria. Six months after cLQTS diagnosis, 90.9% of patients with cLQTS were attached to the workforce compared with 95.0% in the background population (p=0.006 for difference). One year after diagnosis, 93.3% of patients with cLQTS were attached to the workforce compared with 93.8% in the background population (p=0.26). Among patients with cLQTS, a severe cLQTS disease manifestation was associated with workforce detachment 1 year after diagnosis (compared with asymptomatic patients; aborted cardiac arrest OR 20.4 (95% CI, 1.7 to 249.9); ventricular tachycardia/syncope OR 10.9 (95% CI, 1.1 to 110.5)). No other associated factors were identified.

CONCLUSIONS: More than 90% of patients with cLQTS remained attached to the workforce 1 year after diagnosis, which was similar to a matched background population. Patients with a severe cLQTS disease manifestation were less likely to be attached to the workforce 1 year after diagnosis.

TidsskriftOpen Heart
Antal sider8
StatusUdgivet - jul. 2022

Bibliografisk note

© Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

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