The Epidemiology of Pheochromocytoma - Is the Incidence Increasing? Study design and preliminary data

Publikation: KonferencebidragPosterForskning

Background
Though pheochromocytoma is a rare disease, it is a frequent diagnostic dilemma in adrenal incidentaloma individuals necessitating clarification due to the potential life-threatening nature of pheochromocytoma. There is a widespread perception of an increase in the number of patients with pheochromocytoma, but the true incidence, morbidity and mortality associated with pheochromocytoma remains to be fully elucidated.

Materials and methods
The cohort of potential cases of pheochromocytoma patients was identified with a data extract on relevant diagnoses from the National Patient Registry covering all years 1977-2014.
In addition, data extracts from the National Pathology Registry, the Danish Registry of Causes of Death and the Danish Cancer Registry was performed to identify missing patients in the National Patient Registry.

The pheochromocytoma diagnosis is currently being verified by a thorough study of the health records of all potential cases. When a diagnosis is confirmed or suspected, details - including age at diagnosis, symptoms at diagnosis, co-morbidity, location of pheochromocytoma, hereditary predisposition, operational technique, recurrence, etc. - is entered into a new database. These data will be used to describe the presentation of the disease in the clinic.
Incidence rates of pheochromocytoma will be analyzed using Poisson regression, and confidence limits using an approximation to Poisson distribution.

Prelimanary Results
The process of verifying pheochromocytoma is still ongoing with 107 cases of pheochromocyoma currently verified.
OriginalsprogEngelsk
Udgivelsesår17 mar. 2016
StatusUdgivet - 17 mar. 2016
BegivenhedKongres for Medicinsk Studenterforskning 2016 - Sinatur Hotel Storebælt, Nyborg, Danmark
Varighed: 17 mar. 201620 mar. 2016

Konference

KonferenceKongres for Medicinsk Studenterforskning 2016
LokationSinatur Hotel Storebælt
LandDanmark
ByNyborg
Periode17/03/201620/03/2016

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