Support groups for carers of a person with dementia who lives at home: A focused ethnographic study

Publikation: Bidrag til tidsskrift/Konferencebidrag i tidsskrift /Bidrag til avisTidsskriftartikelForskningpeer review

DOI

  • Jette Lauritzen
  • Merete Bjerrum
  • Preben Ulrich Pedersen, Center for Kliniske Retningslinjer, Aalborg Universitet, Danmark
  • Erik Elgaard Sørensen, Forskningsenhed for Klinisk Sygepleje, Aalborg Universitetshospital, Klinisk Medicin, Aalborg Universitet, Danmark
Aims
To explore and understand carer participation in support groups when caring for a person with dementia who lives at home

Design
Focused ethnographic design.

Methods
Participant observations and semi‐structured interviews were conducted from January ‐ December 2015. The data were collected from four support groups in the Danish primary health care system. Interviews were conducted with 25 carers. An inductive content analysis of the data was performed.

Results
Three themes were identified: emotional well‐being due to peer and family support, emotional sense of togetherness despite hardships and emotional and ethical considerations in caregiving.

Conclusion
Support group participation with positive peer interaction increases carer self‐esteem and feelings of togetherness, as well as an awareness of maintaining the care receiver's dignity and prevention of conflicts with families, resulting in an improvement in carer well‐being, leading to increased motivation to continue caring. Carers who hid their group participation face a potential conflict with the care receiver.
OriginalsprogEngelsk
TidsskriftJournal of Advanced Nursing
Vol/bind75
Nummer11
Sider (fra-til)2934-2942
Antal sider9
ISSN0309-2402
DOI
StatusUdgivet - nov. 2019

    Forskningsområder

  • Dementia, support group, caregiver support, life experiences, nursing, focused ethnography, Content analysis, postive experiences

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