Aarhus Universitets segl

English

Du er her: AU » Om AU » Organisation » Rare diseases in healthcare priority setting:

Om AU

Rare diseases in healthcare priority setting: should rarity matter?

Publikation: Bidrag til tidsskrift/Konferencebidrag i tidsskrift /Bidrag til avis › Tidsskriftartikel › Forskning › peer review

Dokumenter

DOI

Rare diseases pose a particular priority setting problem. The UK gives rare diseases special priority in healthcare priority setting. Effectively, the National Health Service is willing to pay much more to gain a quality-adjusted life-year related to a very rare disease than one related to a more common condition. But should rare diseases receive priority in the allocation of scarce healthcare resources? This article develops and evaluates four arguments in favour of such a priority. These pertain to public values, luck egalitarian distributive justice the epistemic difficulties of obtaining knowledge about rare diseases and the incentives created by a higher willingness to pay. The first is at odds with our knowledge regarding popular opinion. The three other arguments may provide a reason to fund rare diseases generously. However, they are either overinclusive because they would also justify funding for many non-rare diseases or underinclusive in the sense of justifying priority for only some rare diseases. The arguments thus fail to provide a justification that tracks rareness as such.

OriginalsprogEngelsk
TidsskriftJournal of Medical Ethics
Vol/bind48
Nummer9
Sider (fra-til)624-628
Antal sider5
ISSN0306-6800
DOI
StatusUdgivet - sep. 2022
BegivenhedMeasuring Health: Ethical Perspectives - Aarhus University, Aarhus, Danmark
Varighed: 18 jun. 2020 → 18 jun. 2020

Konference

KonferenceMeasuring Health: Ethical Perspectives
LokationAarhus University
LandDanmark
ByAarhus
Periode18/06/2020 → 18/06/2020

Se relationer på Aarhus Universitet Citationsformater

Aktiviteter

Projekter

Download-statistik

Ingen data tilgængelig

ID: 216287999