Psykologisk Institut

Patient-reported outcomes from patients with heart failure participating in the future patient telerehabilitation program: Data from the intervention arm of a randomized controlled trial

Publikation: Bidrag til tidsskrift/Konferencebidrag i tidsskrift /Bidrag til avisTidsskriftartikelForskningpeer review

Standard

Patient-reported outcomes from patients with heart failure participating in the future patient telerehabilitation program : Data from the intervention arm of a randomized controlled trial. / Schacksen, Cathrine Skov; Dyrvig, Anne Kirstine; Henneberg, Nanna Celina; Gade, Josefine Dam; Spindler, Helle; Refsgaard, Jens; Hollingdal, Malene; Dittman, Lars; Dremstrup, Kim; Dinesen, Birthe.

I: JMIR Cardio, Bind 5, Nr. 2, e26544, 07.2021.

Publikation: Bidrag til tidsskrift/Konferencebidrag i tidsskrift /Bidrag til avisTidsskriftartikelForskningpeer review

Harvard

APA

CBE

MLA

Vancouver

Author

Schacksen, Cathrine Skov ; Dyrvig, Anne Kirstine ; Henneberg, Nanna Celina ; Gade, Josefine Dam ; Spindler, Helle ; Refsgaard, Jens ; Hollingdal, Malene ; Dittman, Lars ; Dremstrup, Kim ; Dinesen, Birthe. / Patient-reported outcomes from patients with heart failure participating in the future patient telerehabilitation program : Data from the intervention arm of a randomized controlled trial. I: JMIR Cardio. 2021 ; Bind 5, Nr. 2.

Bibtex

@article{4bc0699bd2ab4d1b894cf8538688c52c,
title = "Patient-reported outcomes from patients with heart failure participating in the future patient telerehabilitation program: Data from the intervention arm of a randomized controlled trial",
abstract = "Background: More than 37 million people worldwide have been diagnosed with heart failure, which is a growing burden on the health sector. Cardiac rehabilitation aims to improve patients' recovery, functional capacity, psychosocial well-being, and health-related quality of life. However, cardiac rehabilitation programs have poor compliance and adherence. Telerehabilitation may be a solution to overcome some of these challenges to cardiac rehabilitation by making it more individualized. As part of the Future Patient Telerehabilitation program, a digital toolbox aimed at enabling patients with heart failure to monitor and evaluate their own current status has been developed and tested using data from a patient-reported outcome questionnaire that the patient filled in every alternate week for 1 year. Objective: The aim of this study is to evaluate the changes in quality of life and well-being among patients with heart failure, who are participants in the Future Patient Telerehabilitation program over the course of 1 year. Methods: In total, 140 patients were enrolled in the Future Patient Telerehabilitation program and randomized into either the telerehabilitation group (n=70) or the control group (n=70). Of the 70 patients in the telerehabilitation group, 56 (80.0%) answered the patient-reported outcome questionnaire and completed the program, and these 56 patients comprised the study population. The patient-reported outcomes consisted of three components: (1) questions regarding the patients' sleep patterns assessed using the Spiegel Sleep Questionnaire; (2) measurements of physical limitations, symptoms, self-efficacy, social interaction, and quality of life assessed using the Kansas City Cardiomyopathy Questionnaire in 10 dimensions; and (3) 5 additional questions regarding psychological well-being that were developed by the research group. Results: The changes in scores during 1 year of the study were examined using 1-sample Wilcoxon signed-rank tests. There were significant differences in the scores for most of the slopes of the scores from the dimensions of the Kansas City Cardiomyopathy Questionnaire (P<.05). Conclusions: There was a significant increase in clinical and social well-being and quality of life during the 1-year period of participating in a telerehabilitation program. These results suggest that patient-reported outcome questionnaires may be used as a tool for patients in a telerehabilitation program that can both monitor and guide patients in mastering their own symptoms.",
keywords = "Adherence, Cardiology, Cardiomyopathy, Compliance, Heart, Heart failure, Kansas City Cardiomyopathy Questionnaire, Monitoring, Patient-reported outcome, Patients, Quality of life, Rehabilitation, Self-reporting, Telehealth, Telemonitoring",
author = "Schacksen, {Cathrine Skov} and Dyrvig, {Anne Kirstine} and Henneberg, {Nanna Celina} and Gade, {Josefine Dam} and Helle Spindler and Jens Refsgaard and Malene Hollingdal and Lars Dittman and Kim Dremstrup and Birthe Dinesen",
note = "Publisher Copyright: {\textcopyright} 2021 JMIR Publications Inc.. All rights reserved.",
year = "2021",
month = jul,
doi = "10.2196/26544",
language = "English",
volume = "5",
journal = "JMIR Cardio",
issn = "2561-1011",
publisher = "JMIR Publications Inc.",
number = "2",

}

RIS

TY - JOUR

T1 - Patient-reported outcomes from patients with heart failure participating in the future patient telerehabilitation program

T2 - Data from the intervention arm of a randomized controlled trial

AU - Schacksen, Cathrine Skov

AU - Dyrvig, Anne Kirstine

AU - Henneberg, Nanna Celina

AU - Gade, Josefine Dam

AU - Spindler, Helle

AU - Refsgaard, Jens

AU - Hollingdal, Malene

AU - Dittman, Lars

AU - Dremstrup, Kim

AU - Dinesen, Birthe

N1 - Publisher Copyright: © 2021 JMIR Publications Inc.. All rights reserved.

PY - 2021/7

Y1 - 2021/7

N2 - Background: More than 37 million people worldwide have been diagnosed with heart failure, which is a growing burden on the health sector. Cardiac rehabilitation aims to improve patients' recovery, functional capacity, psychosocial well-being, and health-related quality of life. However, cardiac rehabilitation programs have poor compliance and adherence. Telerehabilitation may be a solution to overcome some of these challenges to cardiac rehabilitation by making it more individualized. As part of the Future Patient Telerehabilitation program, a digital toolbox aimed at enabling patients with heart failure to monitor and evaluate their own current status has been developed and tested using data from a patient-reported outcome questionnaire that the patient filled in every alternate week for 1 year. Objective: The aim of this study is to evaluate the changes in quality of life and well-being among patients with heart failure, who are participants in the Future Patient Telerehabilitation program over the course of 1 year. Methods: In total, 140 patients were enrolled in the Future Patient Telerehabilitation program and randomized into either the telerehabilitation group (n=70) or the control group (n=70). Of the 70 patients in the telerehabilitation group, 56 (80.0%) answered the patient-reported outcome questionnaire and completed the program, and these 56 patients comprised the study population. The patient-reported outcomes consisted of three components: (1) questions regarding the patients' sleep patterns assessed using the Spiegel Sleep Questionnaire; (2) measurements of physical limitations, symptoms, self-efficacy, social interaction, and quality of life assessed using the Kansas City Cardiomyopathy Questionnaire in 10 dimensions; and (3) 5 additional questions regarding psychological well-being that were developed by the research group. Results: The changes in scores during 1 year of the study were examined using 1-sample Wilcoxon signed-rank tests. There were significant differences in the scores for most of the slopes of the scores from the dimensions of the Kansas City Cardiomyopathy Questionnaire (P<.05). Conclusions: There was a significant increase in clinical and social well-being and quality of life during the 1-year period of participating in a telerehabilitation program. These results suggest that patient-reported outcome questionnaires may be used as a tool for patients in a telerehabilitation program that can both monitor and guide patients in mastering their own symptoms.

AB - Background: More than 37 million people worldwide have been diagnosed with heart failure, which is a growing burden on the health sector. Cardiac rehabilitation aims to improve patients' recovery, functional capacity, psychosocial well-being, and health-related quality of life. However, cardiac rehabilitation programs have poor compliance and adherence. Telerehabilitation may be a solution to overcome some of these challenges to cardiac rehabilitation by making it more individualized. As part of the Future Patient Telerehabilitation program, a digital toolbox aimed at enabling patients with heart failure to monitor and evaluate their own current status has been developed and tested using data from a patient-reported outcome questionnaire that the patient filled in every alternate week for 1 year. Objective: The aim of this study is to evaluate the changes in quality of life and well-being among patients with heart failure, who are participants in the Future Patient Telerehabilitation program over the course of 1 year. Methods: In total, 140 patients were enrolled in the Future Patient Telerehabilitation program and randomized into either the telerehabilitation group (n=70) or the control group (n=70). Of the 70 patients in the telerehabilitation group, 56 (80.0%) answered the patient-reported outcome questionnaire and completed the program, and these 56 patients comprised the study population. The patient-reported outcomes consisted of three components: (1) questions regarding the patients' sleep patterns assessed using the Spiegel Sleep Questionnaire; (2) measurements of physical limitations, symptoms, self-efficacy, social interaction, and quality of life assessed using the Kansas City Cardiomyopathy Questionnaire in 10 dimensions; and (3) 5 additional questions regarding psychological well-being that were developed by the research group. Results: The changes in scores during 1 year of the study were examined using 1-sample Wilcoxon signed-rank tests. There were significant differences in the scores for most of the slopes of the scores from the dimensions of the Kansas City Cardiomyopathy Questionnaire (P<.05). Conclusions: There was a significant increase in clinical and social well-being and quality of life during the 1-year period of participating in a telerehabilitation program. These results suggest that patient-reported outcome questionnaires may be used as a tool for patients in a telerehabilitation program that can both monitor and guide patients in mastering their own symptoms.

KW - Adherence

KW - Cardiology

KW - Cardiomyopathy

KW - Compliance

KW - Heart

KW - Heart failure

KW - Kansas City Cardiomyopathy Questionnaire

KW - Monitoring

KW - Patient-reported outcome

KW - Patients

KW - Quality of life

KW - Rehabilitation

KW - Self-reporting

KW - Telehealth

KW - Telemonitoring

UR - http://www.scopus.com/inward/record.url?scp=85109174070&partnerID=8YFLogxK

U2 - 10.2196/26544

DO - 10.2196/26544

M3 - Journal article

C2 - 34255642

AN - SCOPUS:85109174070

VL - 5

JO - JMIR Cardio

JF - JMIR Cardio

SN - 2561-1011

IS - 2

M1 - e26544

ER -