Moving exercise research in multiple sclerosis forward (the MoXFo initiative): Developing consensus statements for research

Publikation: Bidrag til tidsskrift/Konferencebidrag i tidsskrift /Bidrag til avisTidsskriftartikelForskningpeer review

DOI

  • Ulrik Dalgas
  • Lars G. Hvid
  • Gert Kwakkel, Vrije Universiteit Amsterdam, Northwestern University, Amsterdam Rehabilitation Research Centre
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  • Robert W. Motl, University of Alabama at Birmingham
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  • Vincent de Groot, VU University Medical Center
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  • Peter Feys, Hasselt University
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  • Bert Op’t Eijnde, Hasselt University
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  • Susan Coote, University of Limerick
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  • Heleen Beckerman, VU University Medical Center
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  • Klaus Pfeifer, Friedrich-Alexander University Erlangen-Nürnberg
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  • René Streber, Friedrich-Alexander University Erlangen-Nürnberg, Deutscher Verband für Gesundheitssport und Sporttherapie e.V. (DVGS)
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  • Stefan Peters, Deutscher Verband für Gesundheitssport und Sporttherapie e.V. (DVGS)
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  • Karin Riemann-Lorenz, Uke Universitätsklinikum Hamburg-Eppendorf, Hamburg, Germany.
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  • Sina Cathérine Rosenkranz, Uke Universitätsklinikum Hamburg-Eppendorf, Hamburg, Germany.
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  • Diego Centonze, IRCCS Istituto Neurologico Mediterraneo Neuromed - Pozzilli (IS)
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  • Paul Van Asch, Fit Up Physiotherapy Centre
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  • Jens Bansi, Rehabilitationsklinik-Valens
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  • Brian M. Sandroff, University of Alabama at Birmingham
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  • Lara A. Pilutti, University of Ottawa
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  • Michelle Ploughman, Memorial University of Newfoundland
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  • Jennifer Freeman, University of Plymouth
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  • Lorna Paul, Glasgow Caledonian University
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  • Helen Dawes, Oxford Brookes University
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  • Anders Romberg, Masku Neurological Rehabilitation Center
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  • Alon Kalron, Tel Aviv University
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  • Jan Patrick Stellmann, Aix-Marseille Université
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  • Manuel A. Friese, Uke Universitätsklinikum Hamburg-Eppendorf, Hamburg, Germany.
  • ,
  • Christoph Heesen, Uke Universitätsklinikum Hamburg-Eppendorf, Hamburg, Germany.

Exercise as a subset of physical activity is a cornerstone in the management of multiple sclerosis (MS) based on its pleotropic effects. There is an exponential increase in the quantity of research on exercise in MS, yet a number of barriers associated with study content and quality hamper rapid progress in the field. To address these barriers and accelerate discovery, a new international partnership of MS-related experts in exercise has emerged with the goal of advancing the research agenda. As a first step, the expert panel met in May 2018 and identified the most urgent areas for moving the field forward, and discussed the framework for such a process. This led to identification of five themes, namely “Definitions and terminology,” “Study methodology,” “Reporting and outcomes,” “Adherence to exercise,” and “Mechanisms of action.” Based on the identified themes, five expert groups have been formed, that will further (a) outline the challenges per theme and (b) provide recommendations for moving forward. We aim to involve and collaborate with people with MS/MS organizations (e.g. Multiple Sclerosis International Federation (MSIF) and European Multiple Sclerosis Platform (EMSP)) in all of these five themes. The generation of this thematic framework with multi-expert perspectives can bolster the quality and scope of exercise studies in MS that may ultimately improve the daily lives of people with MS.

OriginalsprogEngelsk
TidsskriftMultiple Sclerosis Journal
Vol/bind26
Nummer11
Sider (fra-til)1303-1308
Antal sider6
ISSN1352-4585
DOI
StatusUdgivet - okt. 2020

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