Life with and after cancer: an interprofessional development project

Publikation: KonferencebidragPosterFormidling

Brief patient pathways and contacts at hospitals as well as reduced staff resources create a need for strengthening of specialist knowledge for patients with cancer.
Department of Oncology in collaboration with Centre for E-learning at Aarhus University Hospital (AUH) developed an online portal for patients with cancer. An interprofessional steering group with representatives from AUH, Regional Hospital West Jutland and Aarhus Municipality was established. All representatives have contributed to decisions concerning and development of the online portal.
This initiative focuses on learning and contributes with knowledge and tools to support patients with cancer and their relatives to cope with life with and after cancer.
The purpose is to support patients with cancer to live an independent and meaningful life with the best possible level of functioning after the cancer diagnosis.
Consensus was reached on three main subjects for the portal: Fatigue, Pain and Psychological impact, based on a list of symptoms (1) and two focus group interviews with patients with cancer.
Interprofessional working groups with specialist knowledge completed the content for the main subjects.
Physiotherapists with specialist knowledge completed the content on physical activity with exercise programmes, training videos and patient narratives. Moreover, tools for making a training diary and setting goals were available at the portal. The portal is based on evidence-based knowledge (2).
Tools were developed e.g. within mindfulness, nutrition, sleep problems and management of new roles in the family.
The online portal is now accessible as a supplement to rehabilitation efforts at hospitals and in municipalities.
User involvement and learning have been emphasized in the development of the portal, which may be transferable to other patient categories.
Evaluation The portal includes a user feedback button. A tracking device shows which pages users have visited. Six months after the launch, statistics will be made as the basis for discussions, adjustments or revision.
A qualitative study is planned to explore if the portal meets patients' demands for new knowledge, skills or attitudes important for daily living.
Bidragets oversatte titelLivet med og efter kræft
StatusUdgivet - 2018
BegivenhedFagkongres Danske fysioterapeuter 2018 - Odense Congress Center, Odense, Danmark
Varighed: 12 apr. 201814 apr. 2018


KonferenceFagkongres Danske fysioterapeuter 2018
LokationOdense Congress Center

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