'I can hardly breathe': Exploring the parental experience of having a child with a functional disorder

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'I can hardly breathe' : Exploring the parental experience of having a child with a functional disorder. / Hulgaard, Ditte Roth; Rask, Charlotte Ulrikka; Risor, Mette Bech; Dehlholm, Gitte.

I: Journal of Child Health Care, Bind 24, Nr. 2, 2020, s. 165-179.

Publikation: Bidrag til tidsskrift/Konferencebidrag i tidsskrift /Bidrag til avisTidsskriftartikelForskningpeer review

Harvard

Hulgaard, DR, Rask, CU, Risor, MB & Dehlholm, G 2020, ''I can hardly breathe': Exploring the parental experience of having a child with a functional disorder', Journal of Child Health Care, bind 24, nr. 2, s. 165-179. https://doi.org/10.1177/1367493519864745

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Vancouver

Author

Hulgaard, Ditte Roth ; Rask, Charlotte Ulrikka ; Risor, Mette Bech ; Dehlholm, Gitte. / 'I can hardly breathe' : Exploring the parental experience of having a child with a functional disorder. I: Journal of Child Health Care. 2020 ; Bind 24, Nr. 2. s. 165-179.

Bibtex

@article{876f3cf5d9a94680a56edb53bd9af519,
title = "'I can hardly breathe': Exploring the parental experience of having a child with a functional disorder",
abstract = "Functional disorders in children and adolescents are common. Still, little is known about parents' experience of having a child with a functional disorder. The aim of this qualitative interview study was to explore challenges encountered by parents caring for a child undergoing treatment for functional disorder. Sixteen parents to children with functional disorders were interviewed when their child was referred from a paediatric department for further specialized treatment with family therapy in child and adolescent mental health services. Analysis identified three themes, reflecting the parental experiences: parents in limbo, which described how limited knowledge about functional disorders among professionals in non-specialized settings influenced parental roles; a counterintuitive kind of caring, describing parental struggles with adhering to treatment recommendations for functional disorders; and challenges to parental identity, describing parental emotional challenges. These challenges may bar the acceptance of psychological treatment approaches in families with a child with functional disorders.",
keywords = "Child and adolescent mental health, family, paediatric, parenting, qualitative approaches, INTERPRETATIVE PHENOMENOLOGICAL ANALYSIS, COGNITIVE-BEHAVIOR THERAPY, UNEXPLAINED CHRONIC PAIN, CHRONIC-FATIGUE-SYNDROME, PATIENT EMPOWERMENT, PSYCHO-EDUCATION, FAMILIES, ADOLESCENTS, DIAGNOSIS, PEOPLE",
author = "Hulgaard, {Ditte Roth} and Rask, {Charlotte Ulrikka} and Risor, {Mette Bech} and Gitte Dehlholm",
year = "2020",
doi = "10.1177/1367493519864745",
language = "English",
volume = "24",
pages = "165--179",
journal = "Journal of Child Health Care",
issn = "1367-4935",
publisher = "SAGE Publications Ltd",
number = "2",

}

RIS

TY - JOUR

T1 - 'I can hardly breathe'

T2 - Exploring the parental experience of having a child with a functional disorder

AU - Hulgaard, Ditte Roth

AU - Rask, Charlotte Ulrikka

AU - Risor, Mette Bech

AU - Dehlholm, Gitte

PY - 2020

Y1 - 2020

N2 - Functional disorders in children and adolescents are common. Still, little is known about parents' experience of having a child with a functional disorder. The aim of this qualitative interview study was to explore challenges encountered by parents caring for a child undergoing treatment for functional disorder. Sixteen parents to children with functional disorders were interviewed when their child was referred from a paediatric department for further specialized treatment with family therapy in child and adolescent mental health services. Analysis identified three themes, reflecting the parental experiences: parents in limbo, which described how limited knowledge about functional disorders among professionals in non-specialized settings influenced parental roles; a counterintuitive kind of caring, describing parental struggles with adhering to treatment recommendations for functional disorders; and challenges to parental identity, describing parental emotional challenges. These challenges may bar the acceptance of psychological treatment approaches in families with a child with functional disorders.

AB - Functional disorders in children and adolescents are common. Still, little is known about parents' experience of having a child with a functional disorder. The aim of this qualitative interview study was to explore challenges encountered by parents caring for a child undergoing treatment for functional disorder. Sixteen parents to children with functional disorders were interviewed when their child was referred from a paediatric department for further specialized treatment with family therapy in child and adolescent mental health services. Analysis identified three themes, reflecting the parental experiences: parents in limbo, which described how limited knowledge about functional disorders among professionals in non-specialized settings influenced parental roles; a counterintuitive kind of caring, describing parental struggles with adhering to treatment recommendations for functional disorders; and challenges to parental identity, describing parental emotional challenges. These challenges may bar the acceptance of psychological treatment approaches in families with a child with functional disorders.

KW - Child and adolescent mental health

KW - family

KW - paediatric

KW - parenting

KW - qualitative approaches

KW - INTERPRETATIVE PHENOMENOLOGICAL ANALYSIS

KW - COGNITIVE-BEHAVIOR THERAPY

KW - UNEXPLAINED CHRONIC PAIN

KW - CHRONIC-FATIGUE-SYNDROME

KW - PATIENT EMPOWERMENT

KW - PSYCHO-EDUCATION

KW - FAMILIES

KW - ADOLESCENTS

KW - DIAGNOSIS

KW - PEOPLE

UR - http://www.scopus.com/inward/record.url?scp=85070289622&partnerID=8YFLogxK

U2 - 10.1177/1367493519864745

DO - 10.1177/1367493519864745

M3 - Journal article

C2 - 31337230

VL - 24

SP - 165

EP - 179

JO - Journal of Child Health Care

JF - Journal of Child Health Care

SN - 1367-4935

IS - 2

ER -