Evaluating the participation of junior members and patient and healthcare professionals representatives in EULAR task forces: results from an international survey

Pierre-Antoine Juge; Tue Wenzel Kragstrup; Luis Fernando Perez-Garcia; Elsa Frãzao-Mateus; Souzi Makri; Peter Boyd; Jette Primdahl; Ricardo J O Ferreira; Theodora P M Vliet Vlieland; Mwidimi Ndosi; Uta Kiltz; Robert Landewé; Kim Lauper; Manouk de Hooge

doi:10.1136/rmdopen-2024-004177

Evaluating the participation of junior members and patient and healthcare professionals representatives in EULAR task forces: results from an international survey

Pierre-Antoine Juge, Tue Wenzel Kragstrup, Luis Fernando Perez-Garcia, Elsa Frãzao-Mateus, Souzi Makri, Peter Boyd, Jette Primdahl, Ricardo J O Ferreira, Theodora P M Vliet Vlieland, Mwidimi Ndosi, Uta Kiltz, Robert Landewé, Kim Lauper, Manouk de Hooge^*

^*Corresponding author af dette arbejde

Publikation: Bidrag til tidsskrift/Konferencebidrag i tidsskrift /Bidrag til avis › Tidsskriftartikel › Forskning › peer review

Abstract

OBJECTIVE: European Alliance of Associations for Rheumatology (EULAR) task forces (TF) requires participation of ≥2 junior members, a health professional in rheumatology (HPR) and two patient research partners for the development of recommendations or points to consider. In this study, participation of these junior and representative members was compared with the one of traditional TF members (convenor, methodologist, fellow and expert TF members).

METHODS: An online survey was developed and emailed to previous EULAR TF members. The survey comprised multiple-choice, open-ended and 0-100 rating scale (fully disagree to fully agree) questions.

RESULTS: In total, 77 responded, 48 (62%) women. In total, 46 (60%) had participated as a junior or representative TF member. Most junior/representative members reported they felt unprepared for their first TF (10/14, 71%). Compared with traditional members, junior/representative members expressed a significantly higher level of uncertainty about their roles within the TF (median score 23 (IQR 7.0-52.0) vs 7 (IQR 0.0-21.0)), and junior/representative members felt less engaged by the convenor (54% vs 71%). Primary factors that facilitated interaction within a TF were experience, expertise and preparation (54%), a supportive atmosphere (42%) and a clear role (12%).

CONCLUSION: Juniors, patients and HPR experience various challenges when participating in a EULAR TF. These challenges differ from and are generally less pronounced than those experienced by traditional TF members. The convenor should introduce the participants to the tasks, emphasise the value of their contributions and how to prepare accordingly for the TF meeting.

Originalsprog	Engelsk
Artikelnummer	e004177
Tidsskrift	RMD Open
Vol/bind	10
Nummer	2
Antal sider	7
ISSN	2056-5933
DOI	https://doi.org/10.1136/rmdopen-2024-004177
Status	Udgivet - 12 jun. 2024

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10.1136/rmdopen-2024-004177Licens: CC BY-NC

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Juge, P.-A., Kragstrup, T. W., Perez-Garcia, L. F., Frãzao-Mateus, E., Makri, S., Boyd, P., Primdahl, J., Ferreira, R. J. O., Vliet Vlieland, T. P. M., Ndosi, M., Kiltz, U., Landewé, R., Lauper, K., & de Hooge, M. (2024). Evaluating the participation of junior members and patient and healthcare professionals representatives in EULAR task forces: results from an international survey. RMD Open, 10(2), Artikel e004177. https://doi.org/10.1136/rmdopen-2024-004177

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title = "Evaluating the participation of junior members and patient and healthcare professionals representatives in EULAR task forces: results from an international survey",

abstract = "OBJECTIVE: European Alliance of Associations for Rheumatology (EULAR) task forces (TF) requires participation of ≥2 junior members, a health professional in rheumatology (HPR) and two patient research partners for the development of recommendations or points to consider. In this study, participation of these junior and representative members was compared with the one of traditional TF members (convenor, methodologist, fellow and expert TF members).METHODS: An online survey was developed and emailed to previous EULAR TF members. The survey comprised multiple-choice, open-ended and 0-100 rating scale (fully disagree to fully agree) questions.RESULTS: In total, 77 responded, 48 (62%) women. In total, 46 (60%) had participated as a junior or representative TF member. Most junior/representative members reported they felt unprepared for their first TF (10/14, 71%). Compared with traditional members, junior/representative members expressed a significantly higher level of uncertainty about their roles within the TF (median score 23 (IQR 7.0-52.0) vs 7 (IQR 0.0-21.0)), and junior/representative members felt less engaged by the convenor (54% vs 71%). Primary factors that facilitated interaction within a TF were experience, expertise and preparation (54%), a supportive atmosphere (42%) and a clear role (12%).CONCLUSION: Juniors, patients and HPR experience various challenges when participating in a EULAR TF. These challenges differ from and are generally less pronounced than those experienced by traditional TF members. The convenor should introduce the participants to the tasks, emphasise the value of their contributions and how to prepare accordingly for the TF meeting.",

keywords = "Adult, Advisory Committees, Europe, Female, Health Personnel/psychology, Humans, Male, Middle Aged, Rheumatology, Surveys and Questionnaires, Qualitative research, Patient Care Team, Health services research",

author = "Pierre-Antoine Juge and Kragstrup, {Tue Wenzel} and Perez-Garcia, {Luis Fernando} and Elsa Fr{\~a}zao-Mateus and Souzi Makri and Peter Boyd and Jette Primdahl and Ferreira, {Ricardo J O} and {Vliet Vlieland}, {Theodora P M} and Mwidimi Ndosi and Uta Kiltz and Robert Landew{\'e} and Kim Lauper and {de Hooge}, Manouk",

year = "2024",

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doi = "10.1136/rmdopen-2024-004177",

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Juge, P-A, Kragstrup, TW, Perez-Garcia, LF, Frãzao-Mateus, E, Makri, S, Boyd, P, Primdahl, J, Ferreira, RJO, Vliet Vlieland, TPM, Ndosi, M, Kiltz, U, Landewé, R, Lauper, K & de Hooge, M 2024, 'Evaluating the participation of junior members and patient and healthcare professionals representatives in EULAR task forces: results from an international survey', RMD Open, bind 10, nr. 2, e004177. https://doi.org/10.1136/rmdopen-2024-004177

Evaluating the participation of junior members and patient and healthcare professionals representatives in EULAR task forces: results from an international survey. / Juge, Pierre-Antoine; Kragstrup, Tue Wenzel; Perez-Garcia, Luis Fernando et al.
I: RMD Open, Bind 10, Nr. 2, e004177, 12.06.2024.

Publikation: Bidrag til tidsskrift/Konferencebidrag i tidsskrift /Bidrag til avis › Tidsskriftartikel › Forskning › peer review

TY - JOUR

T1 - Evaluating the participation of junior members and patient and healthcare professionals representatives in EULAR task forces

T2 - results from an international survey

AU - Juge, Pierre-Antoine

AU - Kragstrup, Tue Wenzel

AU - Perez-Garcia, Luis Fernando

AU - Frãzao-Mateus, Elsa

AU - Makri, Souzi

AU - Boyd, Peter

AU - Primdahl, Jette

AU - Ferreira, Ricardo J O

AU - Vliet Vlieland, Theodora P M

AU - Ndosi, Mwidimi

AU - Kiltz, Uta

AU - Landewé, Robert

AU - Lauper, Kim

AU - de Hooge, Manouk

PY - 2024/6/12

Y1 - 2024/6/12

N2 - OBJECTIVE: European Alliance of Associations for Rheumatology (EULAR) task forces (TF) requires participation of ≥2 junior members, a health professional in rheumatology (HPR) and two patient research partners for the development of recommendations or points to consider. In this study, participation of these junior and representative members was compared with the one of traditional TF members (convenor, methodologist, fellow and expert TF members).METHODS: An online survey was developed and emailed to previous EULAR TF members. The survey comprised multiple-choice, open-ended and 0-100 rating scale (fully disagree to fully agree) questions.RESULTS: In total, 77 responded, 48 (62%) women. In total, 46 (60%) had participated as a junior or representative TF member. Most junior/representative members reported they felt unprepared for their first TF (10/14, 71%). Compared with traditional members, junior/representative members expressed a significantly higher level of uncertainty about their roles within the TF (median score 23 (IQR 7.0-52.0) vs 7 (IQR 0.0-21.0)), and junior/representative members felt less engaged by the convenor (54% vs 71%). Primary factors that facilitated interaction within a TF were experience, expertise and preparation (54%), a supportive atmosphere (42%) and a clear role (12%).CONCLUSION: Juniors, patients and HPR experience various challenges when participating in a EULAR TF. These challenges differ from and are generally less pronounced than those experienced by traditional TF members. The convenor should introduce the participants to the tasks, emphasise the value of their contributions and how to prepare accordingly for the TF meeting.

AB - OBJECTIVE: European Alliance of Associations for Rheumatology (EULAR) task forces (TF) requires participation of ≥2 junior members, a health professional in rheumatology (HPR) and two patient research partners for the development of recommendations or points to consider. In this study, participation of these junior and representative members was compared with the one of traditional TF members (convenor, methodologist, fellow and expert TF members).METHODS: An online survey was developed and emailed to previous EULAR TF members. The survey comprised multiple-choice, open-ended and 0-100 rating scale (fully disagree to fully agree) questions.RESULTS: In total, 77 responded, 48 (62%) women. In total, 46 (60%) had participated as a junior or representative TF member. Most junior/representative members reported they felt unprepared for their first TF (10/14, 71%). Compared with traditional members, junior/representative members expressed a significantly higher level of uncertainty about their roles within the TF (median score 23 (IQR 7.0-52.0) vs 7 (IQR 0.0-21.0)), and junior/representative members felt less engaged by the convenor (54% vs 71%). Primary factors that facilitated interaction within a TF were experience, expertise and preparation (54%), a supportive atmosphere (42%) and a clear role (12%).CONCLUSION: Juniors, patients and HPR experience various challenges when participating in a EULAR TF. These challenges differ from and are generally less pronounced than those experienced by traditional TF members. The convenor should introduce the participants to the tasks, emphasise the value of their contributions and how to prepare accordingly for the TF meeting.

KW - Adult

KW - Advisory Committees

KW - Europe

KW - Female

KW - Health Personnel/psychology

KW - Humans

KW - Male

KW - Middle Aged

KW - Rheumatology

KW - Surveys and Questionnaires

KW - Qualitative research

KW - Patient Care Team

KW - Health services research

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U2 - 10.1136/rmdopen-2024-004177

DO - 10.1136/rmdopen-2024-004177

M3 - Journal article

C2 - 38866591

SN - 2056-5933

VL - 10

JO - RMD Open

JF - RMD Open

IS - 2

M1 - e004177

ER -

Evaluating the participation of junior members and patient and healthcare professionals representatives in EULAR task forces: results from an international survey

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