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European Respiratory Society clinical practice guideline: palliative care for people with COPD or interstitial lung disease

Publikation: Bidrag til tidsskrift/Konferencebidrag i tidsskrift /Bidrag til avis › Tidsskriftartikel › Forskning › peer review

DOI

  • Daisy J.A. Janssen, Maastricht University
    • ,
  • Sabrina Bajwah, King's College London
    • ,
  • Michele Hilton Boon, Glasgow Caledonian University
    • ,
  • Courtney Coleman, European Lung Foundation
    • ,
  • David C. Currow, Faculty of Science, Medicine and Health
    • ,
  • Albert Devillers, Association Belge Francophone contre la Fibrose Pulmonaire (ABFFP)
    • ,
  • Chantal Vandendungen, Association Belge Francophone contre la Fibrose Pulmonaire (ABFFP)
    • ,
  • Magnus Ekström, Lund University
    • ,
  • Ron Flewett, Pulmonary Fibrosis Trust
    • ,
  • Sarah Greenley, University of Hull
    • ,
  • Mai Britt Guldin
  • Cristina Jácome, University of Porto
    • ,
  • Miriam J. Johnson, University of Hull
    • ,
  • Geana Paula Kurita, Københavns Universitet
    • ,
  • Matthew Maddocks, King's College London
    • ,
  • Alda Marques, University of Aveiro
    • ,
  • Hilary Pinnock, University of Edinburgh
    • ,
  • Steffen T. Simon, University of Cologne
    • ,
  • Thomy Tonia, University of Bern
    • ,
  • Kristoffer Marsaa, Region Hovedstaden

There is increased awareness of palliative care needs in people with COPD or interstitial lung disease (ILD). This European Respiratory Society (ERS) task force aimed to provide recommendations for initiation and integration of palliative care into the respiratory care of adult people with COPD or ILD. The ERS task force consisted of 20 members, including representatives of people with COPD or ILD and informal caregivers. Eight questions were formulated, four in the Population, Intervention, Comparison, Outcome format. These were addressed with full systematic reviews and application of Grading of Recommendations Assessment, Development and Evaluation for assessing the evidence. Four additional questions were addressed narratively. An "evidence-to-decision" framework was used to formulate recommendations. The following definition of palliative care for people with COPD or ILD was agreed. A holistic and multidisciplinary person-centred approach aiming to control symptoms and improve quality of life of people with serious health-related suffering because of COPD or ILD, and to support their informal caregivers. Recommendations were made regarding people with COPD or ILD and their informal caregivers: to consider palliative care when physical, psychological, social or existential needs are identified through holistic needs assessment; to offer palliative care interventions, including support for informal caregivers, in accordance with such needs; to offer advance care planning in accordance with preferences; and to integrate palliative care into routine COPD and ILD care. Recommendations should be reconsidered as new evidence becomes available.

OriginalsprogEngelsk
Artikelnummer2202014
TidsskriftThe European respiratory journal
Vol/bind62
Nummer2
Antal sider22
ISSN0903-1936
DOI
StatusUdgivet - aug. 2023

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