A process evaluation examining how user involvement impacts BackTrace development of a digital solution for patients with low back pain.

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Abstract

Introduction: In recent years, engaging people in research has received increasing recognition as a method for improving person-centered research practice, clinical practice and healthcare. this generates a need for more transparent research, measuring how person-centered methods impacts research and the development of research-based solutions. Hence, this paper conducts a process-evaluation, examining how the involvement of health professionals, patients and their relatives impacted the development of BackTrace.BackTrace is a people-centred digital solution for patients with low-back pain. It empowers patients to engage in their own health and support a dialogue-based person-centred communication between the patients and the health professional and the inter-professional dialogue. Aim: To investigate the impacts of user involvement on development of a digital health solution BackTrace.Methods: A two-part retrospective process evaluation examines the level of user involvement (patients, relatives and healthcare professionals) in development of BackTrace. First part; describing, through the INVOLVE conceptual framework, the range and content of user involvement during the development process, using qualitative interviews with the project management. Second part; examining and identifying user input aimed at developing BackTrace through text condensation. 50 documents were screened, containing field notes from workshops and meetings with users. 30 documents were included for further analysis. 700 inputs were identified; after which they were categorized into themes.Results: The interviews are conducted and the analysis is proceeding. Initial findings show a clear description of why and how people were engaged and involved throughout the development phase of BackTrace. The analysis of inputs from users is completed. It resulted in 8 themes exemplifying areas of impact; Content, Information, General features, Treatment plan, Empowerment, Target group, Challenges and Information technology. Conclusion: The initial analysis of data, shows a decisive impact from user input to the development of BackTrace. They helped ensure relevant content that can empower patients, by engaging them as an active part in their treatment and assist professionals in making a shared treatment plan.Implications for applicability: This paper illustrates how user involvement in research can help develop person-centred solutions for healthcare. It ensures that solutions address the both health professionals and patients' needs, but also a means of empowering them in managing their health. Reference- Skovlund et al. (2020) The impact of patient involvement in research- INVOLVE (2012) Briefing notes for researchers involving the public in NHS, public health and social care research.- Mockford C et al. (2009 )a systematic review of the impact of Patient and Public Involvement on NHS healthcare services. The National Centre for Involvement 2009.
OriginalsprogEngelsk
TidsskriftInternational Journal of Integrated Care
Vol/bind22
ISSN1568-4156
DOI
StatusUdgivet - 1 nov. 2022

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