Projektdetaljer
Beskrivelse
Funding: Central Denmark Region, Funds for Strategic Research
Annette de Thurah (Principal investigator (PI, and WP 2), Liv Marit Valen Schougaard (Co- PI, and WP 1), Regine Grytnes (WP 3,7), Line Raunsbæk Knudsen (WP 4), Birgith Engelst Grove (WP 5,6), Lotte Ørneborg Rodkjær (WP 8).
This research program Health Connect aims to provide clinically relevant and application-oriented health service research that will contribute to the future development of new digital solutions in the healthcare system. In the coming years, healthcare services will face a growing demand due to a larger elderly population and an increasing number of patients with multiple health-related conditions. Today, patients have high expectations of treatment and care, and they play a crucial role in their own treatment and follow-up. Digital solutions can support clinical practice by strengthening the patients' notion of quality and accessibility, and by providing relevant patient information and guidance. Using Patient Reported Outcomes (PRO) in the form of questionnaires that patients fill out before the consultation can enhance communication and serve as a valuable tool for triage and assessment in clinical practice. Within this research program, we will develop and implement "fit for purpose" digital solutions in collaboration with participating clinical departments. The research program is divided into eight work packages (WPs):
WP 1 Health Connect - Digital PRO in older patients with cancer
We know from previous research that lack of participation in digital solutions can be a challenge, and this is often the case for vulnerable patient groups. The overall aim of this project is to investigate the challenges experienced by non-responders to digital questionnaires, and to develop and evaluate a new solution tailored to the digital competencies and individual needs of older patients.
WP 2 Health Connect - Evaluation of the effectiveness and cost-effectiveness of a telehealth-based intervention in polymyalgia rheumatica
Polymyalgia rheumatica (PMR) is the second most common rheumatic disease and the most common in patients over 50 years old. Glucocorticoids (GC) are the first-line treatment for PMR. While effective, they are also known for their dose-dependent long-term complications, reported in over 60% of PMR patients. The overall aim of this study is to develop and assess a patient-reported outcome (PRO)-based digital solution for monitoring disease activity in PMR while reducing glucocorticoid use.
WP 3 Health Connect - Digital support for patients with bipolar disorder
Patients with bipolar affective disorder experience periodic manic and depressive episodes, and their treatment will often consist of medication as well as psychosocial therapy and participation in peer groups. In clinical practice, efforts to support patients using digital solutions have the potential for individual tailoring of treatment and follow-up between consultations. The overall aim of this project is to develop digital solutions in cooperation with clinicians and patients that can support newly referred patients with bipolar disorder, to investigate its effect, and explore patients' and clinicians' experience of digital patient support.
WP 4 Health Connect - Implementation of digital patient education for patients with rheumatoid arthritis in clinical practice
Providing self-management support through diverse patient education (PE) methods is an essential component of treatment and care for individuals with rheumatic and musculoskeletal diseases. Recently, we have examined multiple aspects of digital PE for patients newly diagnosed with rheumatoid arthritis (RA), including intervention effectiveness, patients' perspectives, and implementation aspects. The aim of this project is to promote its implementation into clinical practice. We plan to enhance the digital PE intervention by developing strategies and health literacy actions followed by an implementation study across four rheumatology clinics in the Central Denmark Region. Additionally, we will conduct a cost-effectiveness evaluation using data from the effectiveness study to assess the costs and benefits associated with the technology.
WP 5 Health Connect - Health economic analysis of digital services for chronic kidney disease
The growing elderly population is expected to elevate the prevalence of chronic kidney disease (CKD), potentially intensifying pressure on the healthcare system. Consequently, a randomized controlled study evaluated the efficacy of remote CKD monitoring. While remote patient management may appear more cost-effective than traditional in-centre follow-up, this assumption may not hold true, as expenses could rise in other areas. Therefore, a health economic analysis is necessary to fully understand the economic aspects. This project aims to conduct an economic evaluation of remote outpatient follow-up for patients with CKD.
WP 6 Health Connect - Digital support for management of patients with migraine
Migraine affects 10% of the Danish population, often during working age, with substantial costs for both individuals and the society. Previously, patients had consultations every six months, but many manage well on medication. Implementing PRO data helps healthcare professionals assess treatment status, allowing patients to receive medication without prior consultation.
This study aims to explore how PROs and the Digital Care Pathway Guide (EMENTO) can support more coherent care pathways and strengthen patients’ ability to manage their migraines.
WP 7 Health Connect – Healthcare professionals' experiences with PRO in digital patient care
Health care professionals play a central role in the implementation of digital solutions in the healthcare system. The aim of this study is to investigate how health care professionals experience and use digital PRO solutions by illuminating their capabilities, motivation and opportunities for using PRO, and how their practice related to the use of PRO solutions re-configure clinical practice. On this basis a training program for health care professionals will be developed.
WP 8 Health Connect - Involvement of patient partners in the development of digital interventions
Involvement of patients and relatives in the research process is important to improve the relevance, quality, and implementation of research and to strengthen patient involvement in their own disease and treatment. Knowledge about patient and public involvement (PPI) in the development of digital interventions is limited, and the aim of this project is to develop and implement a systematic approach to PPI to ensure a dynamic and meaningful involvement of patients in the research process within the overall research program (in WP 1,2,3,4,6,7).
Annette de Thurah (Principal investigator (PI, and WP 2), Liv Marit Valen Schougaard (Co- PI, and WP 1), Regine Grytnes (WP 3,7), Line Raunsbæk Knudsen (WP 4), Birgith Engelst Grove (WP 5,6), Lotte Ørneborg Rodkjær (WP 8).
This research program Health Connect aims to provide clinically relevant and application-oriented health service research that will contribute to the future development of new digital solutions in the healthcare system. In the coming years, healthcare services will face a growing demand due to a larger elderly population and an increasing number of patients with multiple health-related conditions. Today, patients have high expectations of treatment and care, and they play a crucial role in their own treatment and follow-up. Digital solutions can support clinical practice by strengthening the patients' notion of quality and accessibility, and by providing relevant patient information and guidance. Using Patient Reported Outcomes (PRO) in the form of questionnaires that patients fill out before the consultation can enhance communication and serve as a valuable tool for triage and assessment in clinical practice. Within this research program, we will develop and implement "fit for purpose" digital solutions in collaboration with participating clinical departments. The research program is divided into eight work packages (WPs):
WP 1 Health Connect - Digital PRO in older patients with cancer
We know from previous research that lack of participation in digital solutions can be a challenge, and this is often the case for vulnerable patient groups. The overall aim of this project is to investigate the challenges experienced by non-responders to digital questionnaires, and to develop and evaluate a new solution tailored to the digital competencies and individual needs of older patients.
WP 2 Health Connect - Evaluation of the effectiveness and cost-effectiveness of a telehealth-based intervention in polymyalgia rheumatica
Polymyalgia rheumatica (PMR) is the second most common rheumatic disease and the most common in patients over 50 years old. Glucocorticoids (GC) are the first-line treatment for PMR. While effective, they are also known for their dose-dependent long-term complications, reported in over 60% of PMR patients. The overall aim of this study is to develop and assess a patient-reported outcome (PRO)-based digital solution for monitoring disease activity in PMR while reducing glucocorticoid use.
WP 3 Health Connect - Digital support for patients with bipolar disorder
Patients with bipolar affective disorder experience periodic manic and depressive episodes, and their treatment will often consist of medication as well as psychosocial therapy and participation in peer groups. In clinical practice, efforts to support patients using digital solutions have the potential for individual tailoring of treatment and follow-up between consultations. The overall aim of this project is to develop digital solutions in cooperation with clinicians and patients that can support newly referred patients with bipolar disorder, to investigate its effect, and explore patients' and clinicians' experience of digital patient support.
WP 4 Health Connect - Implementation of digital patient education for patients with rheumatoid arthritis in clinical practice
Providing self-management support through diverse patient education (PE) methods is an essential component of treatment and care for individuals with rheumatic and musculoskeletal diseases. Recently, we have examined multiple aspects of digital PE for patients newly diagnosed with rheumatoid arthritis (RA), including intervention effectiveness, patients' perspectives, and implementation aspects. The aim of this project is to promote its implementation into clinical practice. We plan to enhance the digital PE intervention by developing strategies and health literacy actions followed by an implementation study across four rheumatology clinics in the Central Denmark Region. Additionally, we will conduct a cost-effectiveness evaluation using data from the effectiveness study to assess the costs and benefits associated with the technology.
WP 5 Health Connect - Health economic analysis of digital services for chronic kidney disease
The growing elderly population is expected to elevate the prevalence of chronic kidney disease (CKD), potentially intensifying pressure on the healthcare system. Consequently, a randomized controlled study evaluated the efficacy of remote CKD monitoring. While remote patient management may appear more cost-effective than traditional in-centre follow-up, this assumption may not hold true, as expenses could rise in other areas. Therefore, a health economic analysis is necessary to fully understand the economic aspects. This project aims to conduct an economic evaluation of remote outpatient follow-up for patients with CKD.
WP 6 Health Connect - Digital support for management of patients with migraine
Migraine affects 10% of the Danish population, often during working age, with substantial costs for both individuals and the society. Previously, patients had consultations every six months, but many manage well on medication. Implementing PRO data helps healthcare professionals assess treatment status, allowing patients to receive medication without prior consultation.
This study aims to explore how PROs and the Digital Care Pathway Guide (EMENTO) can support more coherent care pathways and strengthen patients’ ability to manage their migraines.
WP 7 Health Connect – Healthcare professionals' experiences with PRO in digital patient care
Health care professionals play a central role in the implementation of digital solutions in the healthcare system. The aim of this study is to investigate how health care professionals experience and use digital PRO solutions by illuminating their capabilities, motivation and opportunities for using PRO, and how their practice related to the use of PRO solutions re-configure clinical practice. On this basis a training program for health care professionals will be developed.
WP 8 Health Connect - Involvement of patient partners in the development of digital interventions
Involvement of patients and relatives in the research process is important to improve the relevance, quality, and implementation of research and to strengthen patient involvement in their own disease and treatment. Knowledge about patient and public involvement (PPI) in the development of digital interventions is limited, and the aim of this project is to develop and implement a systematic approach to PPI to ensure a dynamic and meaningful involvement of patients in the research process within the overall research program (in WP 1,2,3,4,6,7).
| Status | Igangværende |
|---|---|
| Effektiv start/slut dato | 01/01/2024 → 31/12/2026 |