Niels Okkels

Fifty years' development and future perspectives of psychiatric register research

Publikation: Bidrag til tidsskrift/Konferencebidrag i tidsskrift /Bidrag til avisTidsskriftartikelForskningpeer review

  • P Munk-Jørgensen, Department of Organic Psychiatric Disorders and Emergency Ward, Aarhus University Hospital, Risskov, Denmark., Danmark
  • Niels Okkels
  • D Golberg, Ukendt
  • M Ruggeri
  • ,
  • G Thornicroft

OBJECTIVE: This article illustrates the development of psychiatric register research and discusses the strengths, limitations, and possible directions for future activities.

METHOD: Examples illustrating the development from the post-World War II introduction of psychiatric register research until today are selected.

RESULTS: The strengths of register research are seen especially within health service. Until recently, when starting linking registers to biobanks, register research had limited value in cause-seeking. Register research benefits from the possibilities for following identifiable persons over long time (lifelong) and the possibilities for linking to other registers and databases. Important limitations of register research are the heterogeneity and questionable validity of the clinical data collected.

CONCLUSION: Future register research can go in the direction of big is beautiful collecting data from all possible sources creating giga-registers. In that case, low data quality will still be an unsolved problem. Or it can take the direction of smaller local clinical databases which has many advantages, for example, integrating clinical knowledge and experience into register research. However, in that case, registers will not be able to deal with rare conditions and diseases.

OriginalsprogEngelsk
TidsskriftActa Psychiatrica Scandinavica
Vol/bind130
Nummer2
Sider (fra-til)87-98
Antal sider12
ISSN0001-690X
DOI
StatusUdgivet - aug. 2014

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