Lucette Kirsten Meillier

Multi-morbidity: A patient perspective on navigating the health care system and everyday life

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Multi-morbidity: A patient perspective on navigating the health care system and everyday life. / Ørtenblad, Lisbeth; Meillier, Lucette Kirsten; Jønsson, Alexandra Brandt Ryborg.

I: Chronic Illness, Bind 14, Nr. 4, 01.12.2018, s. 271-282.

Publikation: Bidrag til tidsskrift/Konferencebidrag i tidsskrift /Bidrag til avisTidsskriftartikelForskningpeer review

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Ørtenblad, Lisbeth ; Meillier, Lucette Kirsten ; Jønsson, Alexandra Brandt Ryborg. / Multi-morbidity: A patient perspective on navigating the health care system and everyday life. I: Chronic Illness. 2018 ; Bind 14, Nr. 4. s. 271-282.

Bibtex

@article{74f14745dcf54376aa7b76f24041de89,
title = "Multi-morbidity: A patient perspective on navigating the health care system and everyday life",
abstract = "Objective: The importance of everyday life when managing the burden of treatment is rarely studied. This article explores the burden of treatment among people with multi-morbidity by investigating the tension between everyday life and the health care system. Method: This was an ethnographic study using individual interviews and participant-observations. An inductive analytical approach was applied, moving from observations and results to broader generalisations. Results: People with multi-morbidity experience dilemmas related to their individual priorities in everyday life and the management of their treatment burdens. Dilemmas were identified within three domains: family and social life; work life; agendas and set goals in appointments with health professionals. Individual resources and priorities in everyday life play a dominant role in resolving dilemmas and navigating the tension between everyday life and the health care system. Discussion: People with multi-morbidity are seldom supported by health professionals in resolving the dilemmas they must face. This study suggests an increased focus on patient-centredness and argues in favour of planning health care through cooperation between health professionals and people with multi-morbidity in a way that integrates both health and everyday life priorities.",
keywords = "burden of treatment, ethnographic study, everyday life, Multi-morbidity, patients' perspectives",
author = "Lisbeth {\O}rtenblad and Meillier, {Lucette Kirsten} and J{\o}nsson, {Alexandra Brandt Ryborg}",
year = "2018",
month = dec,
day = "1",
doi = "10.1177/1742395317731607",
language = "English",
volume = "14",
pages = "271--282",
journal = "Chronic Illness",
issn = "1742-3953",
publisher = "SAGE Publications Ltd",
number = "4",

}

RIS

TY - JOUR

T1 - Multi-morbidity: A patient perspective on navigating the health care system and everyday life

AU - Ørtenblad, Lisbeth

AU - Meillier, Lucette Kirsten

AU - Jønsson, Alexandra Brandt Ryborg

PY - 2018/12/1

Y1 - 2018/12/1

N2 - Objective: The importance of everyday life when managing the burden of treatment is rarely studied. This article explores the burden of treatment among people with multi-morbidity by investigating the tension between everyday life and the health care system. Method: This was an ethnographic study using individual interviews and participant-observations. An inductive analytical approach was applied, moving from observations and results to broader generalisations. Results: People with multi-morbidity experience dilemmas related to their individual priorities in everyday life and the management of their treatment burdens. Dilemmas were identified within three domains: family and social life; work life; agendas and set goals in appointments with health professionals. Individual resources and priorities in everyday life play a dominant role in resolving dilemmas and navigating the tension between everyday life and the health care system. Discussion: People with multi-morbidity are seldom supported by health professionals in resolving the dilemmas they must face. This study suggests an increased focus on patient-centredness and argues in favour of planning health care through cooperation between health professionals and people with multi-morbidity in a way that integrates both health and everyday life priorities.

AB - Objective: The importance of everyday life when managing the burden of treatment is rarely studied. This article explores the burden of treatment among people with multi-morbidity by investigating the tension between everyday life and the health care system. Method: This was an ethnographic study using individual interviews and participant-observations. An inductive analytical approach was applied, moving from observations and results to broader generalisations. Results: People with multi-morbidity experience dilemmas related to their individual priorities in everyday life and the management of their treatment burdens. Dilemmas were identified within three domains: family and social life; work life; agendas and set goals in appointments with health professionals. Individual resources and priorities in everyday life play a dominant role in resolving dilemmas and navigating the tension between everyday life and the health care system. Discussion: People with multi-morbidity are seldom supported by health professionals in resolving the dilemmas they must face. This study suggests an increased focus on patient-centredness and argues in favour of planning health care through cooperation between health professionals and people with multi-morbidity in a way that integrates both health and everyday life priorities.

KW - burden of treatment

KW - ethnographic study

KW - everyday life

KW - Multi-morbidity

KW - patients' perspectives

UR - http://www.scopus.com/inward/record.url?scp=85052565338&partnerID=8YFLogxK

U2 - 10.1177/1742395317731607

DO - 10.1177/1742395317731607

M3 - Journal article

C2 - 28914088

VL - 14

SP - 271

EP - 282

JO - Chronic Illness

JF - Chronic Illness

SN - 1742-3953

IS - 4

ER -