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Lotte Meinert

Children's disengagement from cancer care and treatment on the ward: an undesirable social tactic in the long term

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Children's disengagement from cancer care and treatment on the ward : an undesirable social tactic in the long term. / Løvschal-Nielsen, Pia; Clausen, Niels; Meinert, Lotte.

I: European Journal of Cancer Care, Bind 26, Nr. 6, e12519, 2017.

Publikation: Bidrag til tidsskrift/Konferencebidrag i tidsskrift /Bidrag til avisTidsskriftartikelForskningpeer review

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@article{bd02dcd5232d4a37ae4cb71c876b30f3,
title = "Children's disengagement from cancer care and treatment on the ward: an undesirable social tactic in the long term",
abstract = "This anthropological study explores children’s non-social reactions during the active treatment period, the on-treatment, in a paediatric oncology ward in a Danish university hospital. It is argued that, although some children’s non-social reactions is a tactical disengagement to manage the on-treatment situation, such non-social tactics might ultimately prove an undesirable strategy with negative long-term social consequences for social survivorship. Data were generated over 7 monthsof ethnographic fieldwork between May 2011 and January 2013, using qualitative methods such as participant observation and open-ended interviewing. Fifty children of both sexes between 4 and 15 years, their families and hospital staff participated in the study. These data formed the basis for the study. The findings show that children’s response to care challenges, including exhaustion from care management, exposure from being in a public space, and the open-ended duration of treatment,configure in tactic forms that we term social disengagement. It is suggested that such tactical social disengagement might expand into long-term social patterns, and, as such, change from an alleviating tactic to a socially isolating and damaging tactic for survivors of cancer in childhood.",
keywords = "cancer care and treatment, children's disengagement, coping tactic, Denmark, qualitative methods, social survivorship",
author = "Pia L{\o}vschal-Nielsen and Niels Clausen and Lotte Meinert",
year = "2017",
doi = "10.111/ecc.12519",
language = "English",
volume = "26",
journal = "European Journal of Cancer Care",
issn = "0961-5423",
publisher = "Wiley-Blackwell Publishing Ltd",
number = "6",

}

RIS

TY - JOUR

T1 - Children's disengagement from cancer care and treatment on the ward

T2 - an undesirable social tactic in the long term

AU - Løvschal-Nielsen, Pia

AU - Clausen, Niels

AU - Meinert, Lotte

PY - 2017

Y1 - 2017

N2 - This anthropological study explores children’s non-social reactions during the active treatment period, the on-treatment, in a paediatric oncology ward in a Danish university hospital. It is argued that, although some children’s non-social reactions is a tactical disengagement to manage the on-treatment situation, such non-social tactics might ultimately prove an undesirable strategy with negative long-term social consequences for social survivorship. Data were generated over 7 monthsof ethnographic fieldwork between May 2011 and January 2013, using qualitative methods such as participant observation and open-ended interviewing. Fifty children of both sexes between 4 and 15 years, their families and hospital staff participated in the study. These data formed the basis for the study. The findings show that children’s response to care challenges, including exhaustion from care management, exposure from being in a public space, and the open-ended duration of treatment,configure in tactic forms that we term social disengagement. It is suggested that such tactical social disengagement might expand into long-term social patterns, and, as such, change from an alleviating tactic to a socially isolating and damaging tactic for survivors of cancer in childhood.

AB - This anthropological study explores children’s non-social reactions during the active treatment period, the on-treatment, in a paediatric oncology ward in a Danish university hospital. It is argued that, although some children’s non-social reactions is a tactical disengagement to manage the on-treatment situation, such non-social tactics might ultimately prove an undesirable strategy with negative long-term social consequences for social survivorship. Data were generated over 7 monthsof ethnographic fieldwork between May 2011 and January 2013, using qualitative methods such as participant observation and open-ended interviewing. Fifty children of both sexes between 4 and 15 years, their families and hospital staff participated in the study. These data formed the basis for the study. The findings show that children’s response to care challenges, including exhaustion from care management, exposure from being in a public space, and the open-ended duration of treatment,configure in tactic forms that we term social disengagement. It is suggested that such tactical social disengagement might expand into long-term social patterns, and, as such, change from an alleviating tactic to a socially isolating and damaging tactic for survivors of cancer in childhood.

KW - cancer care and treatment, children's disengagement, coping tactic, Denmark, qualitative methods, social survivorship

U2 - 10.111/ecc.12519

DO - 10.111/ecc.12519

M3 - Journal article

VL - 26

JO - European Journal of Cancer Care

JF - European Journal of Cancer Care

SN - 0961-5423

IS - 6

M1 - e12519

ER -