Role of the nurse in patient education and follow-up of people receiving oral chemotherapy treatment: an international survey

Research output: Contribution to journal/Conference contribution in journal/Contribution to newspaperJournal articleResearchpeer-review

  • Sultan Kav
  • ,
  • Judi Johnson
  • ,
  • Cynthia Rittenberg
  • ,
  • Paz Fernadez-Ortega
  • ,
  • Tarja Suominen
  • ,
  • Pia Riis Olsen
  • Elisabeth Patiraki
  • ,
  • Davina Porock
  • ,
  • Annette Dahler
  • ,
  • Jolanta Toliusiene
  • ,
  • Dusanka Tadic
  • ,
  • Pongpak Pittayapan
  • ,
  • Vijay Roy
  • ,
  • Qi Wang
  • ,
  • Meric Colak
  • ,
  • Hanan Saca-Hazboun
  • ,
  • David Makumi
  • ,
  • Ilana Kadmon
  • ,
  • Sarah Ben Ami
  • ,
  • Elsie Anderson
  • ,
  • Rebecca Clark-Snow

PURPOSE: The aim of this study was to explore the nursing role in education and follow-up of patients who were taking oral chemotherapy (CT) and to identify the worldwide gap in patient education about oral CT.

MATERIALS AND METHODS: Multinational Association of Supportive Care in Cancer members were invited to participate in a survey on oral CT. Nurse coordinators collected data via a 16-item questionnaire. Respondents totaled 1115 oncology nurses from 15 countries.

RESULTS: Findings showed that about half of subjects work in outpatient/ambulatory clinics and had given at least two or more oral CT drugs. Although 52% had some type of guidelines/protocols, 47% reported not having received any education about oral CT drugs. While 64% report being involved in patient education, 58% of subjects indicated lack of patient education materials that are specific for oral CT agents. Only 27% stated that they gave all necessary information such as when and how to take the drugs, drug safety and storage, side effects, and symptom management. Reasons for not being involved in oral CT education and follow-up included beliefs that the physician plans the oral CT and gives patients necessary instructions (34%), that nurses only see patients who receive intravenous chemotherapy (16%), that nurses have lack of knowledge about oral agents (15%), and belief that physicians are responsible for patient follow-up. The nurses suggested better education and follow-up of patients to include the written patient education materials (33%) and professional education for nurses (30%).

CONCLUSIONS: Findings revealed the need for professional education for nurses to ensure comprehensive, consistent patient education and development of written materials for patients receiving oral CT treatment.

Original languageEnglish
JournalSupportive Care in Cancer
Volume16
Issue9
Pages (from-to)1075-83
Number of pages9
ISSN0941-4355
DOIs
Publication statusPublished - Sep 2008

    Research areas

  • Administration, Oral, Antineoplastic Agents, Europe, Health Care Surveys, Humans, International Cooperation, Language, Neoplasms, Nurse's Role, Patient Education as Topic, Prospective Studies, Surveys and Questionnaires, Turkey, United States, Journal Article, Research Support, Non-U.S. Gov't

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